fibromyalgia

Read and learn more about fibromyalgia. For more, visit the Pain Q&A website FeelTheHurt.com

Q: fibromyalgia?
I have been sick for over a year now. I keep going to the doctor with no answers they keep treating the immediate problem and I am starting to think there is more of a major problem. Possibly Fibromyalgia. I have body ache, pain, disturbed sleep, exhaustion, stiffness when I wake up, tingling in my hands and legs. I know I need to see a Dr. I just want to know more about the disease and if there are any treatments to help it. Thanx Bunches!!!

A: My mom actually suffers from FMS. One of the tell tell signs is severe pain at certain pressure points, shoulders, arms, neck, all have these pressure points. From the symptoms you describe, it sounds like you may have it, but it seems like a lot of doctors are falsely diagnosing it. For example I used to work with a girl who was a hairdresser and she was told that she had it because she had stiff shoulders, but… she is a hairdresser, of course she had stiff shoulders. She had no other symptoms to go along with it. Another poster mentioned stress as a factor of flare up which is true. Sometimes the initial occurence happens after a severe injury, in my moms case, an almost fatal car accident 14 years ago. About a year after her wreck she started having unexplained symptoms and was diagnosed with chronic fatigue, depression, and others, but nothing covered all the symptoms until the past few years with the “discovery” of FMS. There are lots of doctors who don’t know very much about it.
My mom has tried a couple of the medications used to treat it, with no relief. One medication gave her nightmares, which is not good if you already have a hard time getting restful sleep. She has decided not to be a guinea pig anymore and to wait until they have a proven treatment. I feel like you should express your opinion to a doctor and don’t stop until you find an answer. It sounds to me like you have reasonable cause to suspect Fibro. Good Luck.

Q: Fibromyalgia?
If you have fibromyalgia where do you feel pain? Can anxiety/depression cause fibromyalgia, or is it more likely that fibromyalgia may cause anxiety/depression?

A: I felt it mostly first in the long muscles of the body, the lower legs, the thighs, the upper arms. then in the chest and back. now it’s every where. I’ve been on permanent disability since Oct. 2002.

Fibromyalgia depletes the brain of serotonin. And that causes depression. Add in the constant pain and the exhaustion from fibro would cause depression than depression causing fibro.

fibro also causes the body to produce more of Substance P. and substance P causes you to feel pain more acutely. since you never know when a flare will happen, it’s normal to be more anxious about life.

Q: FIBROMYALGIA???!!!???!!!???!!!???!!!???!!!???!!!?
My grandmother was diagnosed with fibromyalgia, about a year ago its a terrible disease, that destroys whoever has it and their loved ones lives. I wish everyone luck with this disease it sucks! My Question is… Because my Grandma has it Does it make my parents/sisters/ and my self more likely to get it as well???

A: Yes a family history of it increases your chances of developing it. I am 32 and I have had this stupid disease for about the past 10 years although I never knew what it was until about a year ago. I have no health insurance so I haven’t been diagnosed yet, but I fit all the symptoms, have 14 of the 18 tender points, have had severe stress my entire life and several traumatic injuries that could have triggered it, and my mother was diagnosed with it (back when it was being called Fibrositis).

I was actually happy to have discovered this disease because it meant I wasn’t just a fat, lazy, fruitcake … but then it still sucks to have it. I can’t believe how much it has affected my life, I feel like a little old lady. It is still very misunderstood and most people I have told about it kind of roll their eyes at me because I’m just too young to be feeling like this, but it is becoming more known. Hopefully they will find some better medication (so far I have tried Cymbalta with not much success).

Q: FiBroMyalGia?
How do you manage a life with this “syndrome”? I mean with the pain/dizziness/nausea/meds, how do you have a life? Work? School? Play? This is every day. It doesn’t go away or even ease up enough to do anything but lay in bed. Any suggestions? Just a month into it and am wondering how to live with it! NOT suicidal but seriously don’t know how I’m supposed to have any kind of productive life…

A: I have had this for years. My doctor has me on 24mg amptripiline at night time to help me sleep and calm the sore muscle fibres. This does help immensely. I also have to take 3 Tylenol Arthritis @ bedtime which I began taking about 3months ago. The pain in my body from just turning over in bed was waking me up each night. Getting plenty of rest is a big one and not over exerting yourself helps. Exercise is important and makes you feel better. Sitting or lying down for to long causes you to become stiff and sore. Your daily diet should consume lots of protein.When your stressed or worried about things, this makes things worse. I also have experienced that when its damp and cold outside, your symptoms will flare up. Myself I feel quite normal most days but every once in awhile I’ll have a “crash day”so I will lye down and sleep if possible. Having a great body massage also helps when your sore or have a headache from upper back muscles tightening. Don’t let this slow you down, think positive and be somewhat active everyday. Hope this gives you some insight on the subject, I do work some long hrs. which gives you self worth and a positive outlook. Cocoa

Q: What Fibromyalgia support groups are located in Plymouth UK, and the South West?
Are there any support groups in Plymouth UK, or the South West, still running please? Also, is there anyone living with Fibromyalgia, in the same area, looking for support? I would like to hear from people interested in raising awareness of FMS in the UK.

A: call
Plymouth and District ME Group
It provides information and support for people with ME/CFS, their family and friends.
Contact: 44 Skylark Rise, Woolwell, Plymouth PL6 7SN
E-mail: ruttershome@blueyonder.co.uk
Tel: 01752 214856.

Q: Is there a corelation between fibromyalgia and the consuming of carbonated soft drinks?
If I’ve got fibromyalgia (I think I do) I suspect my diet has something to do with it (prehaps other things too).
If I do have fibromyalgia, carbonated soft drinks heads my list as a possible contributor to it and/or with cafeine as a runner up and/or equal to it? Is there a corelation with either or both if they are taken together in a can or bottle of soda pop?
Thank you for any helpful input because it is getting painful.

Ed

A: Foods/driks can contibute to it for soem people-

but they do not cause it-

Diet will not cure ior releive symptomst-but may help your body compensate

FMS has been believed to be a disorder of teh central nervous system for about 10 yeasr now–and i would think caffeine affects the CNS

I would think it is less likely to be the carbonation

Q: What are good remedies for Fibromyalgia?
I have fibromyalgia and possible rheumatoid arthritis. What are some good treatments/remedies that you or someone you know has found to be helpful?

A: I’m on a number of pain medications for my Fibro, so far the new drug Lyrica is helping a lot. Different things can cause flares for different people. You should check out the books “Fibromyalgia for Dummies” and “Living Well With Chronic Fatigue
and Fibromyalgia” you should also check out about.com’s Fibro/CFS site: http://chronicfatigue.about.com/

Q: Fibromyalgia- what are others way to get relief from the pain?
I’ve had Fibromyalgia for 17 years now. I’ve been off and on Medicine for it. I was just wondering if anyone who has it , had any other methods of pain relief besides medication.

Thanks!

A: First and foremost, fibromyalgia IS a real illness. There is at least one specific test that is used as part of making a differential diagnosis. I’m shocked that the first respondant here doesn’t want to understand and accept this for a fact. Further, although it wouldn’t be used simply because of it’s cost, there are specific tests that can be done during a functional MRI that shows the differences in pain responses between an FM patient and a non-FM patient.

Have you ever seen a chiropractor for an evaluation and help? It is possible to get some help from a DC, but it’s not for everyone. I have other types of arthritis, in addition to FM, so it may be that I would get more relief from a chiro than does someone else. But it’s something to try.

Have you been referred to a pain clinic? This would be a way for you to get a more updated combination of meds and to help to find other specific management methods that will also be of assistance to you.

And when did you last see a rheumatologist? Yes, FM exists, but there are a few other types of arthritis that can mimic some of the effects of FM and that are more easily dealt with. This doesn’t mean that you don’t have FM or that you’re not in pain, it’s just a way of checking that there isn’t anything else going on. Having any one chronic illness does not make you immune from any other type of medical problem, inlcuding other chronic illnesses

Make certain that you stretch and exercise (to tolerance) every day. Doing all of this in heated pool, as a part of an arthritis aquafit program, can do wonders to help relieve some of the pain, and to increase flexibility. It’s also a way to get out on a regular basis, and that helps greatly, too.

Q: What is the best shoe for fibromyalgia sufferers?
I have fibromyalgia, rheumatoid arthritis and osteoporosis and my legs and feet burn from pain. I have tried many different shoes and they work for awhile and then stop. I would like some input from others on the most cushioned shoes both casual, sport and dress.

A: are you sure you don’t have Gout too??
i like New Balance (for wider feet)
very comfortable, buy the Best

Q: Are there any natural remedies for Fibromyalgia that really work?
I have Fibromyalgia and have been on a roller coaster ride of prescription drugs. I’m sick of it. It’s been a couple years, and I’m still not feeling any better. I still hurt like H**L, but I really am sick of being treated like a guinea pig!!! I’m ready to try some natural remedies. I take Elavil for the psychological aspects of the disorder. I don’t want to be one of those people who says, “oh I feel fine” and then quits the meds, but I don’t want to be reliant on any drugs.

A: some people whoa re diagnosed with FMS are cured with b12 shots (may have been misdiagnosed)

5HTP may work-it is teh natural form of SSRIs-but you can’t combine them-

musculoskeltal drugs don’t work. it has been believed taht FMS is neuro (central nervosu system) in nature for about 10 years

the drugs taht have shown promise for peopel taht truly have FMS are Lyrica and Tramadol (SSRI for pain)

Q: How do you handle someone who has fibromyalgia and addicted to pills?
I have no way of 100 % proving that she has overdosed in the past but I know she has. She was diagnosed with fibromyalgia in 1993 and its gone down hill from there. I feel that she is unstable and will take drastic measures. Is there a way to have her committed for her own good?

A: My wife was recently diagnosed with fibromyalgia, and she is in constant pain. I don’t know if eventually she’ll need stronger doses of the medicines she takes, but we have to be understanding, it’s a very painful illness and it takes a lot of patience and empathy from all of us involved. It would be really good if she / you could find a support group. Good luck.

Q: What are some tips for Fibromyalgia sufferers?
My Mom suffers from Fibromyalgia and is frequently tired, weak and in pain everyday. She also has trouble with digesting food and often feels discomfort and bloating. Does her food issues have anything to do with her Fibromyalgia? If so/not, what are some tips she could use to ease her pain and boost her energy?

A: Here is a list of different treatment options for Fibromyalgia:

http://www.prohealth.com/fibromyalgia/modalities.cfm

And here is a list of “Tip for Managing Daily Life” with Fibromyalgia, written by people who suffer from the disease:

http://www.prohealth.com/fibromyalgia/blog/boardDetail.cfm?id=1212521

If you need help with finding an “FM friendly” doctor, this page can help:

http://www.co-cure.org/Good-Doc.htm

I hope some of this information is helpful, and that your mom starts to feel better. Best of luck.

Q: What is the best support forum online for fibromyalgia?
I was just diagnosed with fibromyalgia earlier this week, and I am trying to learn everything I can about it so I can learn to manage it and feel better. I have tried google, and it’s of no help. If anybody out there has this disease and knows of some good websites and a really good support forum, please answer my question. Thanks!

A: www.ivillage.com

i tried about–and found the people to be immature and unwelcoming and territorialistic

the best treatment is to educate your self–fms is HIGHLY Over diagnosed–be sure you really have it–don’t blindly trust teh dioc–most are incompetant

another one–i thgink HEalthboards–is horrible–it is very restrictive –liek if someone asks how to apply for dsiability–you CANNOT list the www.ssa.gov website

or is someone asks for info on a drug–you can notlist the link to teh drug companys website…

Q: What is the percentage of a transplant recipient getting fibromyalgia?
I know my immune system is compromised & fibromyalgia is a auto-immune disorder.

A: Fibromyalgia is not an autoimmune disorder

It is believed to be a disorder of teh central nervous system for about 10 years. Previously it was believed to be amusculoskeletal condition. there was a theory taht it coudl bne autoimmune-but has been mostly discounted.

there is a differnece between autoimmune and immune dusfunction.

autoimmune is when the immune system attacks it’s own body

immune dysfunction is when the immune system under or over reacts to foreign materials.

there is some immune dysfunction in Fibromyalgia.

i could see your concern that Fibromyalgia may cause the immune system to react even more strongly to a transplanted organ and increase the risk of rejection.

I don’t know if this has ever been looked at percentage wise-

would the organ sharing network have info on things such as this?

Q: What type of bread should you eat if you have fibromyalgia?
A relative told me that I should eat white bread only if I have fibromyalgia, which I do, but I have been told wheat is healthier. Is there a website that clarifies anything? Thanks!

A: It seems quite unlikely to me that one type of bread is going to be preferable to another type of bread if you are suffering from fibromyalgia. Do you even understand what your condition is? Perhaps your doctors should have explained it better. It is, as it were, an umbrella term for muscle and joint soreness combined with fatigue. It is not a definite illness. It is also therefore not the same for any two persons. If any dietary measure is advisable, it would be to eat as varied and healthy as possible. In which case I would advise wholegrains. Anyway, despite (or perhaps in line with) what I said earlier, yours might be a form of fibro that is related to your eating pattern and metabolism. The point is: only you can work out what works for you.

With respect to a website. Your best source of information is here: http://www.webmd.com/fibromyalgia

Good health!

fibromyalgia symptoms

Read and learn more about fibromyalgia symptoms. For more, visit the Pain Q&A website FeelTheHurt.com

Q: Fibromyalgia symptoms?
I have been having pain on my neck and shoulders and my upper back in the morning feels very stiff. Doctor says its fibromyalgia. Is stiff back a symptom of fibro?

A: definately–but if it is confined to your back/neck area–i would be concerned that it is a back/neck problem/injury…generally the pain needs to be in the upper and lower half of the body.

it is possible for it to be confined to the ‘trunk’ area–but it is more often a symptom of a localized problem

many docs with use the term to mean any pain–even normal pain from overexertion or a mild injury that doesn’t show up on an xray

Q: fibromyalgia symptoms?
what are the painful symptoms of this feel like for someone who has had this?Thanks.

A: It is a relatively new diagnosis with lots of controversial opinions. Mainly it is pain without any association to injury or arthritic condition. Fibromyalgia has insurance companies scrambling for answers as they really do not want to pay for treatment of something that has yet to be clearly defined by the medical profession.
The following wikipedia description clearly states that the nature of it is not understood.

Fibromyalgia (FM or FMS) is a debilitating chronic syndrome (constellation of signs and symptoms) characterized by diffuse or specific muscle, joint, or bone pain, fatigue, and a wide range of other symptoms. It is not contagious, and recent studies suggest that people with fibromyalgia may be genetically predisposed[1]. It affects more females than males, with a ratio of 9:1 by ACR (American College of Rheumatology) criteria[2]. Fibromyalgia is seen in 3% to 6% of the general population, and is most commonly diagnosed in individuals between the ages of 20 and 50. The nature of fibromyalgia is not well understood, with many frustrated physicians driven to accusing their patients of feigning illness. There are few, if any, treatments available[3], and there is no cure, but the disease is not life-threatening.

Q: What are some natural remedies for fibromyalgia symptoms?
I am 23 years old and I have been diagnosed by a rheumatologist with fibromyalgia. The drugs he prescribed are helping, but I still have pain in all of my muscles. My other symptoms include muscle weakness, difficulty sleeping, fatigue, dizziness, and IBS with constipation. The constipation is even worse with the meds.

A: I’ve had fibro for several years. Glad to hear you are interested in more natural options. I tried all the prescription drugs the Dr. gave me and most of the time they didn’t help and the side effects were awful. I decided to go natural. The first thing to get is Nature’s Way Alive! multivites. They are very good and have everything in them to support immunity. A good calcium/magnesium supplement of 2-1 ratio, malic acid,5 htp,msm,sam e, digestive enzymes, probiotics,coq 10, milk thistle, vit c, alpha lipoic acid,valerian root, olive leaf extract, fish oil, evening primrose oil. Light exercise as tolerated, meditation and yoga are very helpful too. Vitacost.com is a good place to get your supplements. Cheap and good shipping. You have to be very careful during cold and flu season as getting sick is magnified in fibro folks. The vites I mentioned have a green food in them and mushrooms for immunity. But should you get sick or even feel like you are or know you were exposed, get an elderberry extract, zicam or cold eze. Oregano oil is nature’s antibiotic and will kill alot of viruses, olive leaf is much the same. Osillo (a homeopathic remedy you can get at vitacost cheaper that anywhere else) is great. The # 1 flu remedy. Just 3 doses and you’re good. If you still get sick then you know is bacterial and not viral, then use the oregano oil and olive leaf. I know this may sound like a lot but you have to try and see what works best for you. Give it at least 3 months to see how you feel. And lastly, Do all the research and learn all you can. There are some good sources of info online and some companies are coming out with multi vitamins geared for fibro people. I hope this helps some.

Q: Does anyone know of some natural ways to treat Fibromyalgia Symptoms ?
The joint pain is really bad some days. My Mother has fibromyalgia and I want to help her feel better. thanks

A: She should have the doctor rule out Lupus as the cause of this pain. It is a simple blood test called “ANA”. If it is Lupus, the management is different.

For fibromylagia…
1. plenty of rest
2. warmth – avoid cold, it causes muscles to tighten up which can add to the pain of fibromyalgia
3. stretches – they help keep the muscles from tightening up from pain and causing the pain to get worse and last longer. The type of stretch would depend on where the pain is. Good books on stretching with pictures can be found at the bookstore or library.
4. massages – these also help work out tight muscles. I recommend finding someone at a PT office or spa who is trained and expereinced in helping people with sports injuries. You can ask if they have someone with that training at a spa near you. Massages are also relaxing which helps.

Q: Any good suggestions on how to relieve fibromyalgia symptoms?
Every morning I feel like I have been run over by a truck. Sometimes if I take tylenol or something before bed, I feel a little
better in the mornings, but most of the time I still hurt pretty bad. My husband says its all in my head. Do I need some kind of mental medicine or a pain reliever?

A: First of all, sorry, but your husband sounds like a big jerk. What the hell does he know how your body feels? That makes me so mad. What a great support system he is. Honestly, he is probably contributing to your problems. Stress control is a big factor in helping autoimmune diseases. Or really any illness.

Fibromyalgia can overlap or lead to other conditions too, so get checked out for Sacro Iliac joint problems, or arthrodesis conditions of the spine. Or be misdiagnosed.
I wake up with the pain you describe. I have to get out of bed. I sit on the couch, take Advil, use the heating pad and just wait for it to pass. It can take an hour or two.

Heat helps me, mild stretching and specific exercise. Swimming is the best! I also go to physical therapy and yoga.
Advil, and sometimes a muscle relaxer at night is necessary to stop the spasms. A good mattress helped my pain also.

Many benefit from antidepressants, methods to help with sleep, pain meds, and a host of other things. Some don’t need near as much. It is so varied. Everyone with this has different sets of symptoms. Try all conservative things to help you first, but don’t be ashamed to get the medications if you need them.

The regular antidepressants or meds don’t always help those with autoimmune problems, so see only a psychiatrist to follow you on these! Not a random Dr who will give you a prescription and not follow if it works, change the dosage, etc. every month or so until you get it right for you.

A good rheumatologist is essential. Family Drs mean well, but are just not knowledgeable enough in this complex field, not up on all the latest information and complications associated wtih autoimmune diseases to be your primary Dr.
It really takes a team approach to treat these problems, since they have an effect on most every part of your body and mind.

Many patients choose to add mental health therapy to the team effort with your other Drs. It sounds like you would benefit from it, since you are doubting yourself. Or start with finding a good support group of similar people.

Your husband could use some sensitivity training, and needs to go to family counseling or support groups with you. If he does not learn about this illness, and how to respect you and help you, it will be a long hard road for you. It does sound like he has issues and might need therapy himself.

It’s just mean and immature to tell someone who’s in pain, who you supposedly love, that it’s ‘all in their head’. That’s not normal.

Good luck to you, and God bless. Hang in there. It’s an ever changing roller coaster with this, so try to roll with it and learn, learn, learn how to help yourself in natural ways.

Q: Has anybody notice their Fibromyalgia symptoms get worse after having a Mirena fitted?

A: I don’t think many people (me included) will know what Fibromyagia or Mirena mean, so with due respect please explain.♥♥♥

Q: Can FIBROMYALGIA symptoms be worse in colder Michigan weather?

A: Hi JJTAY

Of course weather conditions affect the body and can exacerate the issue. I

would do either of the following for your pain: Reiki, Healing Touch, and Therapeutic Touch, all of which can significantly improve fibromyalgia pain symptoms, and which can be taught to patients as a form of self-care, as well as being provided by professional energy healers.

Causes of Fibromyalgia
There is not one specific cause for primary fibromyalgia. Certain common features among fibromyalgia patients provide a better idea as to the primary factors that are involved in its onset, however. These include dental amalgam fillings, hormone imbalances, infection, neurotransmitter imbalances, sleep problems, problems with the thalamus gland, and physical trauma. Other factors that can play a role include chemical and food allergies and sensitivities, chronic stress, and dysfunctions in system.muscle metabolism.

Conventional physicians treat fibromyalgia primarily through the use of painkiller medications. Such an approach fails to address the multiple causes of fibromyalgia, and also carries with it the risk of serious side effects. In addition, this symptom care approach is typical of conventional medicine`s failure to properly understand chronic health conditions such as fibromyalgia, which explains why it so often fails to successfully treat such conditions. Practitioners of alternative medicine, on the other hand, focus their treatment approaches on the multiple factors involved in fibromyalgia in order to eliminate them, while simultaneously stimulating the body`s ability to repair itself. What follows is an overview of some of the most common therapies they employ in order to achieve those goals

Quick Action Plan for Fibromyalgia

1. A healthy, whole foods diet is an important part of any fibromyaglia treatment program. Emphasize organic foods, especially fresh, organic vegetables, and drink plenty of pure, filtered water throughout the day. For even more benefits, consider adopting a vegetarian diet, which has been shown to significantly reduce fibromyalgia symptoms.

2. Essential nutrients to help treat fibromyalgia include vitamin C, vitamin E, niacinimide (vitamin B3), eicosapentaenoic acid (EPA-an essential fatty acid), magnesium, selenium, zinc, and the lipotrophic factors inositol, methionine, and phosphatidyl choline. The nutritional supplements cetyl myristoleate and SAMe are also highly beneficial, as it the Meyers Cocktail, which must be administered by a trained health care practitioner.

3. Herbal remedies for fibromyalgia include cayenne and chamomile. An herbal combination of tinctures of black cohosh, celery, dandelion, devil`s claw, Echinacea, and licorice in equal parts, can also be helpful.

4. Homeopathic remedies for fibromyalgia include Arnica, Bryonia, and Rhus. Tox.

5. Various bodywork therapies, such as Massage, Acupressure, Bowen Therapy, Feldenkrais, myotherapy, Rolfing, Shiatsu, Therapeutic Touch, and Trigger Point Therapy, can provide significant relief of fibromyalgia pain and speed healing.

6. Mind/body medicine therapies such as biofeedback, guided imagery and visualization, hypnotherapy, and meditation, can help relieve chronic stress, thereby soothing muscle tension and reducing pain

7. Be sure to do a colon and liver cleanse to clean out the toxins in the colon and the blood. Most important step is cleansing and detoxifying the body.

Best of health to you

Q: When do symptoms of fibromyalgia start or possibly can start?
I have like all the symptoms. Im a an 18 year old female.

A: fibromyalgia is highly overdiagnosed by incompetant docs–its not any where near as prevelant as reported-

it is a real neuro condition—but actually not that common.

my symptoms started at 5

there are many conditions that mimin FMS.

even an aggressive lifestyle—I know someone who is overactive–volunatarilly only sleeping 5 hours a night/engaging in strenuaous activity voluntarily—she was diagnosed with Fms–but if she would just change her habits–she would proabbly be ‘cured’

Q: Fibromyalgia – symptoms, feelings of those who have it?
I’m trying to understand this disease – a friend has been recently diagnosed. What can I do to help her?

A: Having had fibromyalgia since 1982, I can say that the best thing you can do for your friend is to believe her when she tells you about what she is going through. It is not hypochondria – it is a REAL illness that is awful to have, so just be supportive. There is no cure as of yet. Symptoms fluctuate from day to day. Researchers are not sure what causes fibromyalgia, although some now think it’s a viral illness affecting the hypothalamus portion of the brain. My site at www.fms-help.com is a compassionate, supportive and informative place for people with FMS, their family and friends. Please visit and surf around. I have 50 signs of fibromyalgia, 100 tips for coping, and a lot of intriguing articles that will enlighten. Your friend needs all the support she can get. The fact that you wrote shows that you care, and that is wonderful!

Q: What produces the same symptoms as fibromyalgia
I experience;
unpatterned pain all over my body (shooting, and stabbing pain) (lasting about 60 seconds) It has consistently gotten worse and more frequent over the past 2 years) ( I’m at breaking point, this pain is sometimes debilitating.
I’m tired a lot
Irregular Bowel movements
I don’t sleep well…sometimes not at all
Difficulty paying attention, concentrating

I know these are symptoms of fibromyalgia (because i Looked it up) but is there anything else this could be?

PLEASE HELP
serious answers only

A: there are many other things it could be–

from Multiple Scelrosis and Lymes
to arthrits
to lupus
to depression
to a spinal/nerve injury
to hypothyroidism,
to bacterial or viral infections

Q: Why are other symptoms associated with Fibromyalgia?
Why are symptoms such as:
-Fatigue
-Irritable bowl
-chronic headaches/migraine
-TMJ
-painful periods, irritable bladder
-mouth, eye and skin sensitivities

associated with Fibromyalgia when Fibromyalgia is about muscles pain/aches?

A: the problem is that just about any symtom imaginable is listed as a possible symtpom of FMS—-

but FMS is highly overdiagnosed–many of teh reports of these symptoms are inaccurate

FMS is a problem with the neuro system–so anything the nueor system can affect could be a symptom.

like fro me–i can lightly scratch my skin–and be in excrutiating pain…

a big symtom is fibrofog–or cognitive problems–mainly difficulty with short term memory

numbness

being klutzy (and not being able to type!)

Q: What are the symptoms of fibromyalgia?
I have the positive ANA but no lupus. I have muscle pain everywhere with fatigue and sometimes my heart will race but my doctor says my heart sounds good. Any advice?

A: pain and fatigue are the primary symptoms.

Q: What are most common symptoms of Fibromyalgia. Do you or someone you know have Fibromyalgia?
I have Mild Cerebral Palsy, affecting only my legs. I am 30, after my daughter was born 5 yrs ago, I had a lot of problems with my legs & back again. I am on disability now. I have always had problems with my legs, I limp, they hurt. Now I am weak , having problems walking long distances (the mall wears me out!). I have started dragging my feet again a lot. I had cortisone & steroid injections today, Dr seemed worried about me dragging my feet. He its too easy to blame everything on Cerebral Palsy. I read a little on Fibromyalgia. My Fiance & I believe I have a lot of those symptons!
Thank you, Sandra

A: i have suffered from fibromyalgia for years and the symptoms can vary for everyone. for me, there are times when it can be incapacitating (sp) but most days…i just have tenderness and mild to moderate pain. heat tends to help and it is beneficial if you can with cp to take a hot bath every night for about 10 to 15 minutes to help with the pain. to be diagnosed for certain…you must see a doctor….most likely a rheumatologist…and they will check pressure points on you…there are 18 different points which will trigger pain….and they will also touch spots that are not those….as some people think they have it….and it isn’t……..so, it is pretty definative. it is difficult at times…although, i imagine the cp is too. there are days when my skin literally hurts…..so, it is hard to explain to everyone. fatigue and stress makes it worse….so, take it easy

Q: What are the main symptoms of fibromyalgia?
My sister has been feeling very tired lately and has painful joints and muscles.

A: The signs of Fibromyalgia are numerous, but they all seem to trace back to pain symptom. Since many medical conditions are only noticed through pain, it can be hard to distinguish the symptoms of Fibromyalgia from a variety of other medical conditions involving pain.

In general, there are pains all over the body with a number of tender points as mentioned above.

One of the complications of the pain symptom is difficulty getting good sleep which will result in additional symptoms of Fibromyalgia such as difficulty remembering things and trouble solving complex problems.

Maybe this is why the Fibromyalgia Syndrome is also often related to the Chronic Fatigue Syndrome.

Depression can also be a symptom of Fibromyalgia as well as other mood issues and disorders.

It is not easy to diagnose so you may want to discuss this with your doctor.

Q: Which vitamins help alleviate symptoms of fibromyalgia?
A relative of mine has been diagnosed with “fibro” and even though she’s receiving medical treatment she still has problems with tiredness and achiness. I’m a big believer in natural remedies and would like advice about this. Thanks.

A: While vitamins won’t cure Fibromyalgia, it’s true that it’s important to be as healthy as you can in order to cope with it. I would suggest that your relative go to the doctor and get a complete blood-work done, one that includes thyroid testing as well as testing for vitamin and mineral deficiencies. A healthy diet is also recommended, one that eliminates sugar and white flour. A third thing that I’ve heard some people with fibromyalgia say is that certain allergies (ie: gluten, etc.) made their symptoms feel worse. By avoiding their triggers, some of their symptoms were lessened. There is a great yahoo group called Fibromyalgia Support Group that is very helpful. I highly recommend it.

fibromyalgia pain

Read and learn more about fibromyalgia pain. For more, visit the Pain Q&A website FeelTheHurt.com

Q: Fibromyalgia Pain?
Looking for some relief with my aches and pains. I have been recently diagnosed with Fibromyalgia and looking for some ideas on the natural side. I am considering meditation, detoxing and a new matteress possibly tempur pedic . . . any advice or other ideas ?

A: Fibromyalgia is nasty. Sorry to hear that, but there is hope. I’ve been reading more and more about people recovering. A couple of resources to check out: http://www.noamalgam.com (dealing with mercury induced illnesses) and 90-Day Immune System Makeover by Dr. Janet Maccaro. It has some valuable information about healthy living and detoxing.

As part of detoxing remember to wrap that new mattress!! It is full of nasty chemicals which will leach out and be absorbed by you. There are directions about how to wrap new mattresses out there somewhere. It is a certain type of plastic you get and you leave just the foot of the mattress open for breathability. I know it has been discussed on the Yahoo group Autism-Mercury. The messages are open, so you can search there for directions.

Best to you in your quest for health.

Q: fibromyalgia pain?
years ago when I was diagnosed the dr. said there was nothing that could be done about the pain … Is there anything new now?

A: i don’t have fibro but before i was diagnosed with AS i thought i had fibro so i went to this chatroom… i still go there even thou i don’t have fibro its a great place with friendly helpful people. the kind of people you make life long friendships with. so check it out you don’t have to pay or any of that..

www.fibrotalk.com

the people there have had fibro for a long time and i’m sure can help you with your questions

Q: What is the best way to handle Fibromyalgia pain?
I have severe fibromyalgia pain and the doctors and myself have tried several prescriptions and other methods to relieve it. I have some relief but it is not enough. I get terrible burning pain in my legs also.
Does anyone know or have any ideas what prescriptions work best for Fibro pain or other methods?

A: I am currently yo-yo-ing back and forth between getting diagnosed with MS and Fibromyalgia. I have the burning pain in my legs 24/7 for the last 4 years. It gets so bad that if I don’t take anything I can’t walk. I have found that taking Ulrtam (Tramadol is the generic and that’s what I actually take) 4 times a day (2 50mg pills each dose) helps greatly. Medication with codeine also works. I was taking 30mg of MS Contin 2 times a day but my stupid pain management doctor reduced the dose and when my family doctor tried to up it again it didn’t work. (*Don’t get prescriptions from any other doctor while still under the care of a pain management doctor. I had discontinued to be a patient at the pain clinic before I started getting scripts from my family doctor again). I have to take the Tramadol as soon as I wake up in the morning and wait about 30 minutes before I can do anything. Sometimes if I know I have to get going right away I will set my alarm and hour earlier then I have to get up and take it and by the time I have to wake up the medicine has had time to work. If all else fails and/or until you find something that works, hot baths could work for you. They have gotten me through plenty of hard nights where my legs just won’t stop hurting and burning. Good luck:)

Q: Does a higher dosage of thyroid medication help fibromyalgia pain?
I do not have a thyroid gland and take meds to regulate. My doctor put me on a higher dosage because she heard it will help my fibromyalgia pain? What are the effects of being over medicated and is this actually a good idea?

A: The symptoms that are commonly lumped together and labeled as Fibromyalgia are often a case of a person that is hypo thyroid and under dosed.

The key is to properly dose the replacement thyroid hormone to provide the hormone needed for body function, then the ‘fibro’ symptoms will lessen, or go away… depends on how severe they are and how long they have been manifest.

If you and your doc is serious about addressing this, my suggestion would be to run the properly labs and adjust accordingly.

By proper labs I mean TSH, as well as the thyroid hormones, Free T4 and Free T3, to be sure that your dosage is correct AND your body is properly converting the replacement hormone that you are taking into the hormone that your body needs to function in an healthy manner..

It’s not just getting the blood levels of the hormones ‘in normal range’ it’s getting them to the proper levels within those ranges to be sure that you body has what it needs to be healthy.

You still don’t want ‘over medicate’, you don’t now want to have so much of the replacement hormone to become hyPERthyroid.. you want enough for your body to function properly.

Q: How can I cure my fibromyalgia pain?
I am writing this with great sorrow and weaping eayes, more that 18 years suffering with neck and shoulder pain. Everyday it continues. Consulted with many doctors, reported that its because of fibromyalgia. Prescribed me cipralex 10 mg and advised me to take 1 perday. 75% cured but not completely. Its very distrubing disease really. I want to become normal. How can I? Is there any solution for the same?

Please help me.

A: There is no cure, but there are a lot of ways of helping the pain if you are willing to follow through.
Find out why you have fibromyalgia, where you in a car crash or another accident, does it run in your family, did you get really sick and then after recovery start developing symptoms? Take why you have it and work with that. If you were in an accident physical therapy might help. Try strength training and relaxation. If it runs in your family try asking them what works best for their pain. If you got sick and then started developing symptoms it might mean you have a weak immune system. If you have that avoid foods your even a little allergic to, avoid sugar and eat healthy and stay fit.
Eating healthy and staying fit are really your best options.What you eat and what you do affect the levels of pain a lot. Eating healthy is the easier one. Eat more Chicken and Lentils and avoid sugar. Staying fit, at least for me, is hard because it hurts to move let alone exercise, but having strong muscles helps your pain a lot. Just walk a little everyday, even if it’s around the block. Strength training for the areas that hurt the most to give support. Try swimming, the water can help you relax and you can exercise at the same time.

Keep a journal what you eat and what exercises you do and how you feel that day and the next. See if you can find a pattern.You can be normal, you’ll have to be careful so that your symptoms don’t come back, but you’ll be able to run around and act like everyone else. Just find what’s right for you.

Q: what has worked best for fibromyalgia pain?
i have been disabled from fibromyalgia for the last 5 years. i have been on triger point injections, antidepresants, muscle relaxers, and numerous other medications. i have tried the over the counter medications and all the natural things made for fibromyalgia. i excercise regularly but i still have so much pain. i was just wondering if any one has found anything that maybe i havent tried.

A: In my experience pain medications do not work. My best advise is make sure to get plenty of sleep, take a multiple vitamin, keep active in at least low impact sports, and consider Magnesium and Malic Acid supplements (consult the doctor or a nutritionist to have your Magnesuim level checked- it is a simpe mouth swab and not painful), meditation does help some in keeping the pain back if you can seperate your mind from the pain, and try to take 2-3 warm Epson Salt baths a week (Epson salt contains Magnesium and soaking in a warm tub of it helps to get the mineral into the body. Magnesium aids the muscles in using oxygen and when the level is low which is typical in Fibro it can cause are cramps, spasms, and pain.) Also, Fibromyalgia is a neurotransmitter disorder certain foods can trigger similiar symptoms to Fibro. Try eliminating Monsodium Glutamate from your diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding’s of an FDA study found MSG to cause a “burning sensation in the back of the neck, forearms and chest”. Otherwise, learn your limits and pace yourself.
Good luck!

Q: Has anyone switched from celexa to cymbalta for pain relief of fibromyalgia?
I am in the process of switching from 40mgs of celexa to cymbalta. Just wondering if there are any withdrawal symptoms in the process and if cymbalta really helps with fibromyalgia pain. How long does the process take?

A: I work in health-care. I have had patients switched from celexa to cymbalta and they say they do better with cymbalta. It helps with their depression and pain from neuropathy. No side effects noticed.

Q: what are some good ways to relieve fibromyalgia pain?
My legs seem to be the pain target where pain likes to go. Are there any natural pain remedies?

A: There are several natural remedies for this pain (I prefer them)! YOGA or mild STRETCHING helps tremendously if you can do it. Another help on very painful days is a hot bath with Epsom salts. This seems to take out the toxins and provide comfort for me – on days when I can hardly stand to get out of bed. If you are looking for more – let me know. I hope this gets you started.

Q: Can you explain specifically the difference between diabetic nerve pain and fibromyalgia pain?
Medicine is connected to my fibromyalgia.

A: My opinion below, and I am not a doctor.

It’s possible that there may not be much of a distinguishable difference. And, it may not be important because what will help one will help the other.

Q: Are there any natural supplements that help with arthritis and fibromyalgia pain?
I have recently been diagnosed with osteoarthritis and am being tested for fibromyalgia as well. Are there any natural supplements out there that really work?

A: There are actually a few that have helped many people (including my Mom, who also has Fibromyalgia). You could try D-Ribose, Magnesium, a good B Complex (B-50 is usually adequate), Malic Acid, Methionine, and/or TMG (Trimethylglycine).
I would personally suggest adding only one of these to your regiment every month or so, just to see how your body reacts to each one (so you can see which ones work well and which ones don’t help).

As far as joints, there are several natural supplements that help joint health, which may remove the cause of the pain. The most popular are Microlactin, Tart Cherries, Glucosamine, Chondroitin, MSM, Hyaluronic Acid, Danish Rose Hips (specifically Danish ones), and Bromelain.
The only thing to really watch out for is allergies. Glucosamine is typically from Shellfish and Microlactin is from milk. As long as you’re not allergic to those, you should have no problem. Good luck and I hope I helped!

Q: any good foods to eat to help with fibromyalgia pain??
I have had fibromyalgia for several years and seems to worsen as I get older. Are their any good foods out there that help with the pain and any other suggestions?

A: I have fibromyalgia also. Cherries have anti-inflammatory properties, I eat a lot during the summer when I tend to have more pain. Generally foods full of antioxidants, like colorful fruits and veggies, teas, fresh squeezed juices help rid the body of toxins that exacerbate pain. High fiber foods purge and cleanse the digestive system to prevent extra gas and toxins, try the above as well as whole grains like oats, brown rice. Emu oil is a surprisingly effective anti-inflammatory as well as many other uses, I’ve been trying it for the last month with excellent results. My best sources of relief were custom-made herbal blends and accupuncture. Look for an herbalist in your area who can evaluate you holistically rather than symptomatically.
Good luck!

Q: How to deal with the pain of fibromyalgia?
I recently discovered that i probably have Fibromyalgia. I need some tips on how to deal with the pain.

A: education

most docs are cluelss -

it s higly misdiagnosed

how did you recently discover you migth have FMS? did a doc do blood tests and imaging studies to rule out other things?

Q: What do you take for your Fibromyalgia pain?
I swim, take aleve and doxepin for sleep. I always so stiff and when I get up from lying or sitting it’s hard to walk. Anyone have a link to a fbromyalgia forum?

A: i like teh message board at
www.ivillage.com

about.com has one too–but those people suppoert misinformation

Q: What does fibromyalgia pain feel like?
My muscles ALWAYS feel sore like I have been working out type of feeling. Also my muscles are always tight. I have been told I have fibromyalia but no one really explained what the pain feels like. Anyone?

A: Fibromyalgia is a painful and frequently long lasting set of pains. Fortunately, fibromyalgia doesn’t progress to crippling, but there can be substantial disability from pain and fatigue. People with fibromyalgia syndrome (FMS) have tender points at 18 specific places on the body and usually have sleep problems so that they awaken feeling as though they never had been to sleep at all. They may also have irritable bowel syndrome, morning stiffness, anxiety, and other symptoms, such as memory problems. I hope this helps you. And good luck.

Q: Any natural tips for dealing with fibromyalgia pain?
Greeneyes: Do you have a website for your products?

A: 1. Magnesium and Malic Acid for muscle pain
2. Fish oil 3000mg daily
3. Sleep at the same time every night
4. Mild exercise is a must along with stretching
5. Massage therapy and Chiropractic care
6. Eliminate simple carbs, processed foods and eat more vegetables, fruits, whole grains, nuts, seeds, lean meat. Eliminate vegetable oils.
7. Reduce stress by meditation, yoga, stretching, reading
8. Reduce corn and wheat in your diet and replace them with green leafy vegetables

treatment fibromyalgia

Read and learn more about treatment fibromyalgia. For more, visit the Pain Q&A website FeelTheHurt.com

Q: What is your treatment for fibromyalgia?
My doctor says he beleives that I have fibromyalgia. My mom has suffered from this for 20 years also so I guess it is hereditary. I am wondering what other people do for the pain and what they have tried out and what works best to help.

A: Hi Natalie,
rather than go into a long message here about Fibro and all of this i will be glad to talk with you and answer any questions you have and help if I can just email me at poohinmissouri@yahoo.com I also own a totally free chat room where people with all kinds of diseases like fibro, lupus,ra,ms,mpd, etc come to talk and help each other about medications they take, symptoms, dealing with doctors, pain and so on, and we would love to have you come join us, sometimes it helps to talk directly to people instead of trying to find answers out on the net, so come and talk with me and the others, we look forward to hearing from you, just email me and i will get the link to you right away

Q: What is the best treatment for Fibromyalgia?
I also have high blood pressure and thyroid trouble. my sysmptoms are leg pain and daytime sleepiness. I had a sleep study done and was told that I have the Fibromyalgia. I am on meds for depression , highblood pressure and thyroid. I already take the zanaflex and ultracet and voltarin. Along with klopin wellbutrin synthroid and topral xl and a baby asprin. What else can be done? What type of dr should I go to to have this treated? Any help would be great.

A: Sounds like you are taking enough medication already. You should be seeing a rhumatologist. Are you sure you don’t have CFS or something else? Have they tested for anything else?

Q: what is currently considered the best treatment for fibromyalgia?
I’ve had fibro for 15 years and have tried just about every treatment out there, but I’m still seeking real relief. What is the latest consensus on the most effective treatment? Many, many thanks!

A: massage therapy is the best way to manage your pain. some people find releif from a very deep tissue massage and others prefer a soft massage such as a swedish.

Q: What is the best pain treatment for fibromyalgia?
Currently I am taking Savella as well as 5 mg Lortabs for pain. The Lortab is having little to no effect lately. Have any of you fellow sufferers had success with other medication for pain?

Also, I do light exercise daily to keep my muscles and joints healthy. I also use hot baths to ease pain as well.

Thanks in advance for you help.

A: I haven’t tried Savella or Lortabs, but I’ve tried a lot of different things in the past. The best thing that works for me (for pain) is Darvocets. I can take up to four a day, but I usually take 0-2. I don’t want my body to get used to Darv’s, so I only take one when I really can’t take the pain. If its mild pain (which it rarely is mild anymore) I’ll take 4 Advil & that seems to help a bit too. I also have been taking Ambien for about 15 years, which is the ONLY thing that helps me sleep at all, if I don’t take Ambien, I don’t sleep, & I feel much much worse, so if you don’t take anything for sleep (most Fibromyalgics have sleeping prob’s) you can ask your doc about taking something to help you sleep. Sleep helps us feel a lot better!

Take care!

Q: What seems to be the best treatment for fibromyalgia? What is the medical opinion on tx with narcotics?
Someone I know takes hydrochodone and I would like to know if the benefits outweight the almost certain dependency.
For clarification purposes, I am not speaking ill of those who use narcotics for pain management and not trying to tell someone how they should be treated. I am just asking a question. Please don’t be so defensive in answering. That is the purpose of this place, is it not?

A: Since pain relievers are practically useless, and the prescriptions carry a lot of baggage like side effects, addiction, etc… I choose to eat the healthiest possible diet, take a few supplements to insure that my immune system and overall health is as good as it can get, and practice daily cognitive therapy (thought conditioning) to enhance my mood. If it weren’t for the latter, I’d probably shoot myself.

Besides the pain, sleeplessness, balance issues, and myriad other symptoms, one of the worst things about fibro is trying to tell people about it. If they can’t see it, they don’t believe it’s there. Even some moron doctors think its a mental issue. I can assure them that it most certainly is not. The cognitive therapy cured my nearly five year long depression… if it can do that (when doctors and their drugs could not), then fibromyalgia would be a piece of cake… if it were mental. It’s not.

Here’s some helpful fibro info:

http://www.geocities.com/seabulls69/fibromyalgia.html

Q: What medicines did your doctor give you for treatment of fibromyalgia?
I’m heading for my appointment in an hour, and I want to kind of know what to expect so I can do a little research.

A: Well, I dont have fmg, but I know that there are many different medications prescribed, from opiates for the pain, muscle relaxants, antidepressants, benzodiazepines, anticonvulsants. How its treated would probably depend on what the doctor thinks, since there are a lot of different approaches since its a pretty variable condition. It would probably be best to not “expect” anything in particular, and, well after you go to your appointment, you’ll have a lot more info.

Q: Any good treatment ideas for fibromyalgia?
I was wanting to know if there was anyone who could tell me what treatments there are for fibromyalgia. If you could name specific medicines it would be helpful. I also suffer from chronic fatigue and its ruining me. Any suggestions would be greatly appreciated.

A: Fibromylagia is believed to be a disorder of teh central nervous system.

there is NO inflammation–therefor NSAIDS and steroids are generally ineffective….

vitamins may help releive some secondary problems which will in turn help FMS–but does not act directly on FMS–

the most promising treatments are neuro in nature–

such as Lyrica and Cymbalta–Tramadol is also a pain medicine that works on teh neuro system…..

be careful with seatives–they are good for short term occassional use–i almost died because my doc pushed sedatives and didn’t properlly wean me–
even Ambiem and Lunesta lose their effectiveness eventually…

Q: Does anyone know of any treatment for Fibromyalgia?
My wife is really suffering from this condition. We were sent to a orthopedist who recommended a balanced diet and blamed the condition on cigarette smoking. We’ve tried Over The Counter Pain medicine but they didn’t help.

A: I have Fibromyalgia -Vitamin D3 supplementation has cleared the constant muscle pain (for the most part). I did high levels for 3 weeks & was pain free. I knocked the dose down to 2000iu’s a day & a week later the pain was back. After restarting high levels, the pain is managed again after 3 days.

Vitamin D3 deficiency is becoming an epidemic. U.S. RDA are much too low & the prescription vitamin D supplements are the wrong type (ergocalciferol ). Luckily you can buy vitamin D3 (cholecalciferol) and the upper limits are extremely high. Current recommendations are for 35iu per pound – a 150# person needs minimum of 5250iu per day & the rda is 400iu. This amount is for minimal needs and does not account for depleted stores. March is when stores are at their lowest.

I personally did 35,000iu per day for 2 months trying to refill my stores. It is highly recommended that you have your vit.D levels tested but my research shows toxicity only at outrageous, long term levels.

I originally did B12 injections daily for a couple of years & then I tried guaifenesin (Dr.St.Amand’s protocol) for 10 years but discovered vit.D3 supplementation only recently & that has worked better than anything else! Vitamin D3 is not a vitamin, it is actually a hormone that controls immune functions.

Low Vitamin D levels greatly increases risk of cancer, diabetes, MS & heart attack.

http://curezone.com/forums/fm.asp?i=1560518#i
http://www.ncbi.nlm.nih.gov/pubmed/17023693

http://articles.mercola.com/sites/articles/archive/2009/10/10/Vitamin-D-Experts-Reveal-the-Truth.aspx

Q: what is the duration of medical treatment for fibromyalgia?
my patient 32 yrs female height 5.2 and weight 95 kgs correctly diagnosed as fibromyalgia under venlafaxine SR 75 mg in morning tab topiramate 100 mg in afternoon and tab amytryptyline 25 mg at bed time doing very well is any furher treatment recommended. thanks

A: once you have found a medication that is working, it is best to stick with that medication until there is a CURE! i have had FM for 10 years and i have yet to find a medication that would allow me to say i’m “doing very well”. others that i have come across feel the same way.

Q: Anyone have any experience with Cymbalta and Fibromyalgia treatment?

A: I was diagnosed about 1 yr ago. I’m 32. I’m on Cymbalta. I was on Lyrica and it didn’t help much but I’ve heard several people say they liked it. Lyrica made me gain weight which didn’t help my condition. I also go to physical therapy 2 times a week and it helps a little. They teach me stretches, a few strengthening exercises and do massage. They also have a hydro-bed which is very nice. The main thing I have learned that helps is to get as much rest as you can. I have 2 kids so it’s not easy but it’s essential. I wear comfy shoes and try to stay somewhat active but don’t push myself too hard or I’ll flare. My rheumatologist suggested yoga which I plan to try. I hope some of this helps. I know it’s frustrating but just know you aren’t alone.
T.

Q: Can anyone suggest a good fibromyalgia treatment center in Atlanta?

A: email

kindness@fibrobetsy.com

she keeps a screened list of good doctors all over teh USA-

there are a few others like fmaware and co cure taht have a lot of baddocs on their lists-even if most patienst say tehya re horrible

Q: Can a person taking Lyrica the drug used for treatment of fibromyalgia cause severe psychological side effects
My business partner has just started taking Lyrica and his behavior is a little scary he is saying and doing things that make me feel uncomfortable

A: it’s not listed as a min side effect-but it’s possible as it is a drug that works on the brain-

you can clal a pharmacy-and say your significant other is taking it-and ask a genral question such as -could this be a side effect

Q: I am looking for options, suggestions for fibromyalgia treatment.?
I have been diagnosed with fibromyalgia as a result of an allergic reaction. I have significant swelling in my joints, which seem to be closely associated with changes in weather or severe weather. Most everything I read about fibromyalgia talks about muscle issues, but mine is purely in the joints, though I did react pretty strongly to the ‘pressure points’ indicative of this disease. I cannot live forever on pain killers and anti-inflammatories.

A: Currently, there is no cure for fibromyalgia, but there are many steps you can take to understand your condition and manage your symptoms. Treatment is focused on managing pain, fatigue, depression, and other symptoms common in fibromyalgia in an attempt to break the cycle of increased sensitivity to pain and decreased physical activity. Every person may respond to a different combination of treatments.

Treatment may include:

Medicines to help you sleep better, relax muscles, or relieve muscle and joint pain. Medicines your doctor may suggest include tricyclic antidepressants, SSRIs, muscle relaxants such as cyclobenzaprine (Flexeril), anticonvulsants (also called antiepileptics), mixed (or dual) reuptake inhibitors or, less often, nonprescription pain relievers.
Exercise therapy to relieve sore muscles and increase energy.
Cognitive-behavioral therapy to help you learn to manage your pain.
Home treatment is also a vital part of managing fibromyalgia. Your efforts to get regular exercise, improve your sleep habits, and reduce stress are as important to your treatment as any medication your doctor may prescribe.

Q: I am looking for the average cost of treatment for fibromyalgia for a college class presentation?

A: www.fmaware.org

Q: Does anyone know of treatment or medication for fibromyalgia?
My wife suffers from Fibromyalgia and no one and nothing has helped thus far. She has tried Celebrex, and other meds. All Doctors seem frustrated by this. Any help would be gratefully appreciated!

A: I have had Fibro since I was 16 and am now almost 36. I have seen more doctors over the years than I can count from Neurologists to Rhuematologists to Chiropractors to Psychiatrists to Pain Specialists. In my experience pain medications do not work. A muscle relaxant is much more helpful. I have also tried biofeedback, steroid shots, trigger point injections, two sleep studies, nerve blocks, accupuncture, foot braces, wrist braces, carpal tunnel release surguries, and so much more. All just torture and I felt like a guinea pig.

My best advise is to get as much rest as she can. Nap if she needs to and sleep when she can. Try delegating some responsibilities to others whether it’s at work or at home.

Taking a muscle relaxant (I take Zanaflex) is more helpful than pain killers. Have her take a good multiple vitamin, a B Complex supplement (helps in dealing with stress), keep active in at least low impact sports, and consider Magnesium and Malic Acid supplements (consult the doctor or a nutritionist to have her Magnesium level checked- it is a simple mouth swab and not painful), meditation does help some in keeping the pain back if you can seperate your mind from the pain. You may want to learn some home massage techniques for people with Fibro.

Have her try to take at least 2-3 warm Epson Salt baths a week (Epson salt contains Magnesium and soaking in a warm tub of it helps to get the mineral into the body. Magnesium aids the muscles in using oxygen and when the level is low which is typical in Fibro it can cause are cramps, spasms, and pain.)

Also, Fibromyalgia is a neurotransmitter disorder and certain foods can trigger similiar symptoms to Fibro. Try eliminating Monsodium Glutamate from herr diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding’s of an FDA study found MSG to cause a “burning sensation in the back of the neck, forearms and chest”. Otherwise, help her learn herr limits and pace herself.

The last source below is a study that shows how Fibromites differ from “normal” people in their reaction to pain. I found it very interesting and it helped me verify that this is all real and not just “in my head”.

Good luck!

chronic fibromyalgia

Read and learn more about chronic fibromyalgia. For more, visit the Pain Q&A website FeelTheHurt.com

Q: Where can I find a good doctor for fibromyalgia /chronic fatigue syndrome?
I’m based in Leicestershire, UK, and need a good NHS doctor, sympathetic and knowledgeable about fibromyalgia / chronic fatigue syndrome. Any suggestions how/where I might be able to access one?

A: Really sorry you have this, can’t really help, but in our area its impossible to find anyone who has an interest. My consultant saw me once told me to adjust my life style to cope and then signed me off. had some hydrotherapy and then was sent to a fitness classs which I declined because there was no way. No one seems to understand the nature of this awful illness.

Q: Have you tried that new fibromyalgia/chronic fatigue med?
Lyrica( spelling may be wrong) is the first fibromyalgia drug approved by the government. It sure seems to help the pain. Since Chronic Fatigue and Fibromaylgia are considered to be the same, try it for chronic fatigue too. Have you tried it and did it work for you?

A: Lyrica is the brand name of pregabalin. It was designed as a more potent successor to gabapentin (Neurontin). There is some understanding of what the drug does in the body, but it is not clearly understood how it works. However, it has been found to be very effective in many disorders, and is approved for use in fibromyalgia, seizures, diabetic neuropathy and anxiety/panic disorders. However, many people have found it successful as treatment for Complex Regional Pain Syndrome (also known as RSD) and other neurologically mediated pain syndromes.

I have prescribed this medication for patients, and have taken the medication myself, and find few complaints of side effects, good response in most patients, and the only issue I have had is patient compliance with the usual three times per day dosing schedule.

Overall, it is a good medication, and a great help to those patients with nerve related pain.

EDIT: Maris has staed that CFS and Fibromyalgia are not the same, and speaking specifically, she is correct. However, there is frequently, a significant overlap of patients with these syndromes, both have no known cause, and the treatments for both, until recently have been largely symptomatic. In persons who report multiple syndromes with unknown causes, it is assumed that the probable cause is related. Thus persons with both CFS and FMS probably have a root cause with multiple symptoms. The more symptomatic a person becomes, the less likely any therapies will be effective. In those persons with multiple overlapping pain syndromes, while antiepileptic drugs can provide a 50% relief of symptoms it is often the expectation of the patient of complete relief that makes them find the medication useless. Also, frequently, these same patients do not reach the optimal dose of 150 mg three times a day, as they notice no benefit at the starting doses and stop the medication early.

Most practitioners find that patients with significant overlapping pain syndromes, while needing medication support for the symptomatic relief, find the greatest benefit from cognitive-behavioral therapies and counseling about reasonable expectations and lifestyle changes.

I wish you the best with your condition. Give the medication three full months, any less will not show you the full benefit.

Q: Is Fibromyalgia considered chronic inlfamation, in which I have both?
I have been check by a infectious disease doctor and he says my immue system is 35, in which my chronic inflamation is the same #. But I neglected to ask where the chronic inflamation was, I just assumed it was from Fibromyalgia. Could this be where my chronic inflamation is and is 35 a dangerous immune system level?

A: there is no inflammation with fms–if you thought there was–you are probably misdiagnised

Q: Is Botox safe for people with Chronic Fatigue and Fibromyalgia?
I have been ill with Chronic Fatigue and Fibromyalgia for many years and I am curious if it’s safe for people with immune dysfunctions to get botox injections? Anyone have any experience with this?

A: For me, Hydroderm is not a complete substitute for Botox. Hydroderm does however work well for me in many
places, and is certainly a lot cheaper. It’s also a lot safer in my opinion. I found some good basic info
at this site that got me started:

http://hydroderm.deal4-you.com

Good luck.

Q: Anyone out ther have any answers on fibromyalgia and chronic pain and how to get by on a daily basis?
I have fibromyalgia and chronic pain, am wondering about meditation techniques or any other techniqeus that help one deal with it on a regular basis, just the pain aspects, I have the whole, pain medication under control, but would like a more wholistic approach.

A: I have had fibro for twenty years now and I can tell you from my personal experience, pain medications do not work. I have tried everything up to Fentynl patches with Actiq suckers. The amount of pain medication that I require is too toxic to my system. After being on pain meds my liver function was consistent with Hepatitis induced from drugs, I had Type II diabetes, high blood pressure, rotting teeth, and terrible bowel problems from the pain meds shutting down my gut. I awoke one day with paramedics looking over me with my husband. I had come out of a seizure (which I’d never had before) and a temp of 107.5. Scary. Moral of the story, pain medication is not effective in Fibro pain treatment because if increasing resistance to the medication it builds up to toxic levels. You are really better off taking a good muscle relaxant (I am on Zanaflex)

As far as insomnia, first have a Sleep Study performed. Mine was ordered by a Neurologist This will tell you what is happening when and if you sleep. For instance I found out that I had three types of insomnia: chronic, initial (can’t fall asleep), and maintenance can’t stay asleep). I also get no REM sleep which explains the extreme fatigue. You can then work with your doctor to address your problems.

The fibro fog can be from medication side effects &/or the bodies concentration on the pain signals it is constantly receiving. I believe the fog is a combination of both and it is genuine. Sometimes I can’t find words to say that I speak all the time. Or I forget things a lot. My computer calendar has helped tremendously. A study was performed to explain why we feel so much pain. You can find it at http://www.fibrohugs.com/article.php?story=20040301120311535
The increased pain response kicks our bodies into the “fight or flight response”. Medscape explains that pain alerts the central nervous system to the presence of a major stressor to the body; one that demands a response. Pain experiences are typically accompanied by systemic responses similar to those that characterize the “fight or flight” dynamic. These responses are caused by the involuntary release of norepinephrine and adrenaline, which causes increased mental alertness, muscle tone, respiratory rate, heart rate, blood pressure, and blood glucose levels. Facilitated clotting factor, shunting of blood from the viscera to skeletal muscles, increased visual acuity, and sweating also occur when catecholamines are released. The “flight or fight” response, although clearly beneficial to the endangered organism, can be a threat to the individual with chronic pain. Further, the level of high acuity and anxiety commonly associated with the “flight or fight” response is often caused by the anticipation of a painful event rather than the actual “experience” of one.

Try taking warm baths in Epson Salt. It contains Magnesium Magnesium allows oxygen into your muscles, reducing cramping and spasms. Consult your doctor or a nutritionist to have your Magnesuim level checked- it is a simpe mouth swab and not painful. If you have a low level, which most people with Fibro do have, take Magnesium and Malic Acid supplements. There are a few studies listed below that explain the rationale of using the combination in treatment of Fibro.

Try eliminating Monsodium Glutamate from your diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding’s of an FDA study found MSG to cause a “burning sensation in the back of the neck, forearms and chest”.

If you need adjustments try to see a D.O. that is familiar with Firbro instead of a chiropractor. In my opinion Chiropractors tend to be a little more violent in their adjustments and can cause more pain in your soft tissue. D.O.s do a more passive adjustment.

Before you exercise make sure you really stretch out and breathe deeply (remember the goal is to get oxygen into your muscles to reduce cramping and spasms. I have found begineer Pilates DVDs to be helpful in guiding me. It also improves your abdominal muscles which takes strain off of your back.

I cannot honestly say that I am 100% myself and realize that I will never be, however, since giving up the narcotic prescriptions I have recovered at least 60%. I have good days and bad days still but the good days are coming more often.

Good luck and hope I helped!

Q: What is the best treatment for Chronic Fatigue/Fibromyalgia?
I tried Cymbalta for 2 weeks and the side effects were horrible.

A: that stuff never worked for me. it was Ibuprofin, warm baths or a hot tub and something to make you sleep at night. the problem is that when you sleep you don’t go into a deep enough sleep for you muscles to relax. therefore you wake up just a tired and sore as when you went to bed if not worse. more than 2 days of sleep depravation will trigger your symtoms. good luck. sometimes you just have to work through the pain. I know it’s not much help but it happens.

Q: How do I differentiate between chronic fatigue syndrome, fibromyalgia, and depression?
I have all the symptoms for CFS and fibromyalgia. All my blood work comes up clean. Since I am a teenage girl, my doctors are trying to push depression although i don’t present the mental symptoms. My parents beleive it is more like CFS or fibromyalgia. How can i differentiate and get the correct diagnosis?

A: Dear,visit a real good specialist,a neurologist.to say accurately is it CFS and fibromyalgia or depression.I am inclined to think that if you not present the symptoms of depression it is more likely you not to suffer from it..and there’s so sure solution and also harmless..for CFS is reqiered to be treated simply with the addition of arginine aspartame,so try it..Sargenor is one product which contains it and you can buy it without prescription and has no side effects..Unfortunately,too many specialist don’t pay the needed attention and are inclined to superficial answers like too much stress,just a case of depression etc.I really suggest you to try(again I repeat Aspartame is totally free and taken even without a prescription will not harm you)..Sagenor..I suffered from CFS and that helped me within 10 days.I also suffered from depresson and can tell there’s a great difference between them!! Good luck and if you need more info or whatever I’ll be glad to answer you!!

Q: Can fibromyalgia or chronic fatigue syndrome be secondary to another medical problem?
My business partner has been VERY ILL for about 6 months I came across a article about cronic fatigue syndrome and fibromyalgia. He has every symptom. we have been to several physicians but still no diagnosis. Should we be looking for something specific other then CFS. can cronic fatigue syndrome secondary to other medical conditions?

A: The best way to be diagnosed is to get an appointment with a Rheumatologist. The College of rheumatology came up with the Tender Points and the diagnostic tool, which is still the standard in determining whether it is Fibromyalgia or one of the other diseases which it can mimic. Fibromyalgia and Chronic Fatigue Syndrome share many similar symptoms but are two separate diseases. A person can have both and yes they can be secondary to another separate Disease. Below I will list a couple of sites you may want to check into. I have found them very helpful in my own disease process. I am sorry for your friend’s illness and hope that at least a diagnosis will be forthcoming. My diagnosis was years in the process, so I understand the frustration. Recently there is so much more attention on the disease with the FDA approving a drug specifically for use with Fibromyalgia, that your friend will hopefully not have as far to go for an answer. Good luck to you both.

Q: how do i get my spouse to understand about my Fibromyalgia and Chronic Fatigue syndrome?
She seems to think I am super women and I can get all housework done and errands in my condition. I just feel like laying down because of the pain and fatigue.

A: soem fibromyalgia association is promoting teh clothespin test-have the well partner put clothespins on her fingers and see how tehy tolerate it-

Think the pregnancy simulators that they have for teh non pregnant partner to teach tehmhow it feels-

could do something liek have your partner wear restrictive clothing-weights on arms and legs-set the alarm to go off at midnight-just keep hitting the snooze to bewoken up agian 9 minutes later-get up after only 3 hours of sleep for a week to simulate the fatigue…..

Q: Did you know Fibromyalgia and Chronic Fatigue Syndrome arent diseases?
They’re simply the symptom of a chemical intoxication or a nutrient deficiency.
Foods from stores contain chemicals. MSG is in almost all canned foods.

A: ther is a differenc ebetween REAL FMS and chemical intoxification andnutrient defiency

ALL 3 exist…..

just because some people have pain and fatigue from MSG or chemicals doesn’t mean tehy have fibromyalgia….

if the MSG theory were true–more people with be sick

there is a rumor about nutrasweet being teh cause of fibro–i never had nutrasweet–yet i have fibro

there are 2 types

REAL fibro
FAKE fibro

among the subtypes of teh fake–are teh attention seekinghypochonriacs and lazy people….as well as peoiple who really have something else such as lymes, arhritis, etc.

i have had REAL fms for over 30 years….i worked at least full time–if not over time–including volunteer work until last year when i experienced a major decline….i do also have a couple otehr conditions that complicate it….

when it started i was a child–i couldn’t keep up with my peers..at times it hurt to breathe and i felt like i was suffocating…i was very uncoordinated….

in my teens i was in excrutiating pain–i would press my leg against the heater trying to relive teh pain…

when i moved into my own place–i told teh neighbors not to call teh police if tehy heard me screaming at night–i was just in pain and tehre wasnithing taht could be done

i had FMS alone for about 12 years without any other chronic helath problems

so yes it is real–but it ishighly overdiagnised..

most docs are incompetant and are teh cause of teh problem–they label any pain–even if due to lifestyle choices or another condition as FMS

i know a diagnosiable hypochndriac taht has iot–as well as someoen who was trying to collect SSDI–while working in child care…..

i have heard many people on here say it is autoimmune or what theya re taking fro inflammation–

it is NOT beleived to be autoimmune–tehre is NO inflammtion–those people are most likely misdiagnosed

i say a couple say they were diagnosed with thyroid and fms on the same day–that in not possible–you have to manage th ethyroid 1st before you can consider teh fms diagnosis…thyroid casues paion and fatigue.

i have seen MANY people on her say they were initially diagnosed with FMS…butt han dound out tehy had thyroid or MS or lymes, etc…..most likely they nver had fms

many docs call teh pain of lymse –fms
or the pain of arthrist is fms–that is MALPRACTICE

they are starting to find irregularities in objective tests..hopefully they will be able to show who really has it and who doesn’t

i am 99% sure i really ahve it–i know i have something–i just cna’t be 100% sure it is fms

unfortunately most people with REAL fms do not recognize teh problem of misdiagnosis and automatically beleive everyione that says they have it–

i will not go to support groups or assocaite withotehr who claim to have it–unless i can beleive they might really have fms–

my hypochondriac friend consatntly whines about it–and i am really sick–and sick of her her bit$% when she really isn’ty sick–this woman thinks she has every disease she hears about..inlcuding cerebal palsy, autism, cancer, pnemonia, etc….

there is a difference between being tired and achy and being in such intense pain you can’t stand up or sleep..

at night i would dig my nails into my stomach trying to disctart myself from the pain in my legs

anyone who claims to ahve cured fms never had it in teh 1st place…they had a different condition such as a nutrional problem taht casued pain and fatigue

i don’t knwo why its all or nothing with people–they think it must always be true if someone says tehy have fms–or its always fake–

its both–i wouldn’t be surprised of only 10% of people claiming to have fms really do–and 90% of the tyime its the docs fault for misdiagnosisng it–teh people are really sick–just not with fms

just like ADHD–it is a real problem–but its also an excuse for misbehaving kids

Q: What’s the difference between fibromyalgia and chronic fatigue syndrome? Is fibro just a milder form of CFS?

A: one is NOT milder than the other

no one knows for sure–they may be teh same thing or variations of tehe same the thing–like type 1 and type 2 diabetes

for now they are considered to be different conditions…

cfids is thought to be autoimmmune and has more ’sick’ type symtpoms lick sore throat fever headache
fms is not beleived to be autoimmune

generally–if someoens primary symtpom is fatigue–they are more likely to be diagnosed with cfids

if teh primary symtom is pain it is more likely to be diagnosed as fms

many people are diagnosed with both

Q: Any problems with getting the shingles vaccine when you have fibromyalgia and chronic fatigue syndrome?
Has anyone with CFS/FM had the shingles vaccine and did you experience any bad side-effects?

A: I would avoid a vaccine. There is mercury, formaldehyde, lead, aluminum, phenols, etc. They are not that safe. I have heard that people with fibromyalgia benefit greatly from a wheat free diet. Maybe give that a try and avoid the poisons…
http://www.thinktwice.com/
http://www.nvic.org/state-site/state-exemptions.htm
http://www.vaclib.org/index.htm
http://www.mercola.com/article/vaccines/neurological_damage.htm
http://www.informedchoice.info/cocktail.html

http://www.vaccines.bizland.com/links.htm

Q: How were you diagnosed with Fibromyalgia and chronic fatigue syndrome?

A: you don’t need to meet the exact criteria to still have FMS–but many conditions are misdiagnosed as FMS–Vitamin deficiency, hormonal problems, lymes, MS, Lupus, depression etc…..if you have any of these–you most likely don’t have FMS–especially once treated and teh symptoms go away

it is possible to have both–but FMS is highly over diagnosed by incompetant doc sho use it as a genral term for pain–

to get a diagnosis–these and other similar conditions need to be ruled out–

Q: I have been diagnosed with Fibromyalgia & Chronic Fatigue Sundrome?
I work full-time but have had some time off ill due to this. Does anyone else suffer from this and do you have any helpful hints on coping with the pain etc. In bed ill right now with flu-like symptoms and extreme muscle pain.
Sorry meant “syndrome”-brain’s a bit dead today.

A: Listen to yourslef-find out what works for you-not what the doctor says works for other people

the best doctors for FMS ADMIT they don’t know much about it-the ones that claim they are experts are usually in it for the money–

There may be docs that are truly experts-but they are rare.

Choose a doc that will treat you as a PARTNER in your helathcare-not like you are subordinate to him…

Q: I think i might have chronic faitgue syndrome or fibromyalgia. how can i tell the difference?
I have been sick since late october early november. So far, the doctors have not been able to diagnose anything and have basically been putting me on random medications just to relieve the symptoms. I have missed 28 days of school since I first began getting sick and I can only miss two more before the end of school. I’m only fifteen.
Symptoms I have:
Fatigue (sleeping thirteen hours +) i have real trouble making it through a school day without falling asleep)
exhaustion
pain in my knees, ankles, and weirdly my elbows.
headaches
congestion
ive had a fever a couple times..
ive been really nauseous occasionally and ende up having to go to the ER because of it.

Does anyone who has CFS or Fibromyalgia identify with these symptoms or know of any other possible causes?
p.s. All blood tests have come up normal, and I dont have rashes or bruising on my body.

A: Oh Boy, Fibromyalsia is really tough to diagnose, but my guess would be at your age it isn’t that. Sounds more like Rheumatoid Arthritis, to me. Your other symptoms DO coincide with either disease. Except for the nausea, and that is probably from your meds. Your body is young for all or those and they are very bad for you.

I too have had a slew of blood tests going as far back as when I was 17(I’m 42 now) and nothing ever showed up in those tests until about 3yrs ago. Have your parents ask for extensive X-Rays, and a MRI. That is one true way to show the deterioration of your cartilage. My son is 21 and has also been diagnosed w/ Osteoarthritis, So you might try to determine if it is in your family background.

I have found 1 product that has been very helpful to my son and I, and its natural. Kinda expensive but we both feel its worth it!!!!

Questions? you can e mail me at bearsmom2005@yahoo.com
Good Luck, it is a long journey, but dont give up!

fibromyalgia fatigue

Read and learn more about fibromyalgia fatigue. For more, visit the Pain Q&A website FeelTheHurt.com

Q: Where can I find a good doctor for fibromyalgia /chronic fatigue syndrome?
I’m based in Leicestershire, UK, and need a good NHS doctor, sympathetic and knowledgeable about fibromyalgia / chronic fatigue syndrome. Any suggestions how/where I might be able to access one?

A: Really sorry you have this, can’t really help, but in our area its impossible to find anyone who has an interest. My consultant saw me once told me to adjust my life style to cope and then signed me off. had some hydrotherapy and then was sent to a fitness classs which I declined because there was no way. No one seems to understand the nature of this awful illness.

Q: What foods are BEST to eat when you have Fibromyalgia & Fatigue?
I have been diagnosed with Fibro&Fatigue and am wondering if anyone else who has this has found foods that help or even foods that make the condition worse. I am trying to find out everything I can about this disease and what I can do to help the symptoms on my own. I am not a big fan of mediciations over a long period of time. Also, what are techniques you use to sleep better at night? Without medication I currently wake up feeling exhausted!

A: I have diagnosed Chronic Fatigue for 16 years now. I have found no food changes to be beneficial per se, but there are sensitivities and allergies to food that we can tolerate when we are healthy, and not at all when we are not well. Additionally, a compromised immune system may not be able to stave off a candidia attack in the gut. For that reason, I have cut back on sugars which promote candidisis, and have given up on milk and wheat products. A friend gave me a copy of “The Fibromyalgia Cookbook” by Shelley Ann Smith. It’s rules are: no red meat, no white flour, limited starchy foods, etc. These are all foods which some persons may be sensitive to, Additives are also limited or eliminated. I tried the recommendations and must report there was no noticeable change. But, every person has a different type of response, and as you know, the illness moves in cycles. As to the sleeping, I have tried melatonin and other soothing herbs like lemon grass with some success. Calcuim before bedtime promotes sound sleep. There are a dozen different pillows on my bed, and l bought a sleep-number bed also. The only single thing that has really helped me sleep well is a prescription med, sorry. A 30mg per day (one fifth the therapeutic dose) of amitriptalyne, an anti-depressant, has helped my sleep and pain management immesely. There is a vitamin and supplement company specifically devoted to CFS-FM help. They are called “Pro Health.” They also donate some of their profts from sales to research on CFS-FM. You can find out about their products online. I am happy to help you find sources and to share my experiences in the quest of the “magic bullet.”

Q: What have you heard about the Fibromyalgia and Fatigue clinics? Are they a god send, or a rip-off?
I am a Registered Nurse who has had fibromyalgia for almost 3 years. I have been seeing an internal medicine doc the entire time. Besides prescribing pain meds, antidepressants, a muscle relaxer and Lyrica, my doc really hasn’t been able to improve my health status. I have a pharmacy of meds to take every day; and I just think we are putting a band-aid on the symptoms, not treating the cause. I am almost positive I am also dealing with myofascial pain syndrome and chronic fatigue syndrome. That is a little history, so here is my question. Has anyone had any exposure to the Fibro and Fatigue clinics? I am aware they test for a LOT of problems and they do unconventional treatments that work for some people. But my problem is the cost of the visits. I was told it is almost $400 a vistit for the 1st two visits. On top of that, it is cash up front, and they can’t even file on your insurance. Why is that? But then again, I would gladly spend $800 to get my life back.

A: Hi,

I think you’re better off with your internal medicine doctor-that is if he/she is willing to make it a team effort to fight this illness. Sometimes we as fibro patients forget that there is no cure, so our expectations of how we feel may not be realistic. But we can improve a great deal and it takes a skilled Dr. that really knows fibromyalgia to understand exactly what to do. These clinics are money banks. They may offer a lot of alternative treatments, but many of these things you can research and do on your own.

My doctor does research on fibromyalgia. He can put fibro in remission because of the information that he found in his research. First, you have to get your doctor to explore the underlying causes of fibromyalgia, such as thyroid (even if the tests read normal), estrogen dominance, adrenal exhaustion, sleep apnea,etc… When you treat the underlying condition, the fibro can get better. But if these underlying causes are never treated, then your fibro will never get better.

Second, in Dr. Wood’s research, he discovered that fibro patients have lower dopamine levels than normal. So his treatment protocol includes using medications to rasie dopamine. Since you already take antidepressants, why not try Wellbution or another one that works on dopamine. Use Baclofen as a muscle relaxer instead of others since it also raises dopamine. If you don’t respond to that, he has used meds that parkinson’s patients use liks mirapex to raise dopamine levels. If you still don’t respond, you may want to try armour thyroid even with normal levels, just to see if there is an underlying problem.

As for Lyrica, it didn’t work well for me, but neuronton works better. Plus, I take magnesium for muscle spasms, melatonin for sleep, and other supplements for other symptoms instead of relying on conventional medicines for relief of all of my symptoms.

I am developing a page on the Bella Online website that will have a directoy of fibromyalgia specialists around the world. I hope to have a listing of legitimate referrals from people who have actually gotten better under these doctor’s care. You can also read some of my articles on fibro since I’m the editor of the fibromyalgia and CFS site at http://fibcfs.bellaonline.com/Site.asp . It’s free information and many of my articles comes from Dr. Wood’s research.

I hope this helps,

Veronica

Q: Is fibromyalgia and cronic fatigue sydrome alike or seperate?
Are the symptoms of fibromyalgia and cronic fatigue syndrome alike? Sorry nutter2b my brain went blank for a few when I asked what it is{cfs} … I have the symptoms of fibromyalgia and was prescribed lyrica but I am not happy with the side effects of it. I have alot of tiredness, some day’s not being able to move much at all. Are there other tests for CFS?

A: there are no specific test fro cfids either

there is still debate if tehre are the same condition or not

the symtpoms over lap a lot

if you have more flu like symptoms with more fatigueit is usually called CFIDS

if you have more pain it is usaully called fms

the 3 approved meds are

LYRICA (ANTI SEIZURE)
CYMBALTA and SAVELLA (SNRI)

other drugs in these classes can be tried

for insatnce—neurontin instead of lyrica

be sure to research and confirm your diagnosis–there is a lot of misinfotmation out there–and fms is highly over diagnosed by incompetant doctors

Q: Have you tried that new fibromyalgia/chronic fatigue med?
Lyrica( spelling may be wrong) is the first fibromyalgia drug approved by the government. It sure seems to help the pain. Since Chronic Fatigue and Fibromaylgia are considered to be the same, try it for chronic fatigue too. Have you tried it and did it work for you?

A: Lyrica is the brand name of pregabalin. It was designed as a more potent successor to gabapentin (Neurontin). There is some understanding of what the drug does in the body, but it is not clearly understood how it works. However, it has been found to be very effective in many disorders, and is approved for use in fibromyalgia, seizures, diabetic neuropathy and anxiety/panic disorders. However, many people have found it successful as treatment for Complex Regional Pain Syndrome (also known as RSD) and other neurologically mediated pain syndromes.

I have prescribed this medication for patients, and have taken the medication myself, and find few complaints of side effects, good response in most patients, and the only issue I have had is patient compliance with the usual three times per day dosing schedule.

Overall, it is a good medication, and a great help to those patients with nerve related pain.

EDIT: Maris has staed that CFS and Fibromyalgia are not the same, and speaking specifically, she is correct. However, there is frequently, a significant overlap of patients with these syndromes, both have no known cause, and the treatments for both, until recently have been largely symptomatic. In persons who report multiple syndromes with unknown causes, it is assumed that the probable cause is related. Thus persons with both CFS and FMS probably have a root cause with multiple symptoms. The more symptomatic a person becomes, the less likely any therapies will be effective. In those persons with multiple overlapping pain syndromes, while antiepileptic drugs can provide a 50% relief of symptoms it is often the expectation of the patient of complete relief that makes them find the medication useless. Also, frequently, these same patients do not reach the optimal dose of 150 mg three times a day, as they notice no benefit at the starting doses and stop the medication early.

Most practitioners find that patients with significant overlapping pain syndromes, while needing medication support for the symptomatic relief, find the greatest benefit from cognitive-behavioral therapies and counseling about reasonable expectations and lifestyle changes.

I wish you the best with your condition. Give the medication three full months, any less will not show you the full benefit.

Q: Ideas needed for dealing with the fatigue of Fibromyalgia?
I’ve been diagnosed with Fibromyalgia since 2002. While the pain of it comes and goes, my bigger problem is the fatigue. I’m always exhausted and can’t get my day started no matter how much I try.

I’m uninsured, so I’m not currently seeing a doctor for this condition. Any serious suggestions would be greatly appreciated. Thank you in advance for your time.

A: I completely empathize with you. I posted a question awhile ago about coping with chronic pain and fatigue and got this video as a response.

http://www.youtube.com/watch?v=QaQRviJfpyU&feature=related

I tried the vitamin regimen and I think it helped a little bit. I’m functioning now and I was not functioning well before. I refuse to take any prescribed meds for it because I think they do more harm than good. It’s vitamins, and I checked with my doctor before I started and he said that even if your body isn’t deficient in these vitamins, you’ll just get rid of them in your urine. Good luck and hang in there.

Q: Can fibromyalgia or chronic fatigue syndrome be secondary to another medical problem?
My business partner has been VERY ILL for about 6 months I came across a article about cronic fatigue syndrome and fibromyalgia. He has every symptom. we have been to several physicians but still no diagnosis. Should we be looking for something specific other then CFS. can cronic fatigue syndrome secondary to other medical conditions?

A: The best way to be diagnosed is to get an appointment with a Rheumatologist. The College of rheumatology came up with the Tender Points and the diagnostic tool, which is still the standard in determining whether it is Fibromyalgia or one of the other diseases which it can mimic. Fibromyalgia and Chronic Fatigue Syndrome share many similar symptoms but are two separate diseases. A person can have both and yes they can be secondary to another separate Disease. Below I will list a couple of sites you may want to check into. I have found them very helpful in my own disease process. I am sorry for your friend’s illness and hope that at least a diagnosis will be forthcoming. My diagnosis was years in the process, so I understand the frustration. Recently there is so much more attention on the disease with the FDA approving a drug specifically for use with Fibromyalgia, that your friend will hopefully not have as far to go for an answer. Good luck to you both.

Q: Is Botox safe for people with Chronic Fatigue and Fibromyalgia?
I have been ill with Chronic Fatigue and Fibromyalgia for many years and I am curious if it’s safe for people with immune dysfunctions to get botox injections? Anyone have any experience with this?

A: For me, Hydroderm is not a complete substitute for Botox. Hydroderm does however work well for me in many
places, and is certainly a lot cheaper. It’s also a lot safer in my opinion. I found some good basic info
at this site that got me started:

http://hydroderm.deal4-you.com

Good luck.

Q: For those who have fibromyalgia + fatigue, what treatments are you receiving?
I’m considering taking medication, but i’m a bit reluctant even though I’m really exhausted every day.

A: I totally understand your reluctance. No one really WANTS to take medication, but remember if that’s what your body needs right now, then don’t totally be against it. Sometimes we just need something that we can’t get on our own from our diets or vitamins, etc.

I’m assuming your doctor suggested a medication? If not, don’t choose medications on your own. I’ve had FMS for, well, we have it all our lives, but I started noticing it 22 years ago, I’ve had it chronically bad (bedridden & housebound a lot) for 6 years. The pain from the FMS is terrible sometimes, but I always thought that fatigue we get, is worse then any pain. Its almost impossible to take! I know. Someone described it as if there was a fire in her building, she wouldn’t have the energy to get up & get out. Its debilitating! People don’t understand that when we say “fatigue” because EVERYONE on the face of the earth gets fatigued & tired & sleepy sometimes, but what we are forced to go through is indescribable.

I know you didn’t ask about all of this, but FMS + Fatigue + treatments, it all goes hand in hand.

I’ve tried different things for many years, from pain medication to diet changes, to extreme protocols, & I’m sorry to say that there’s really not a lot out there that actually prevents the fatigue part of it all, you can get help with pain which helps us relax more which in turn gives us a touch more stamina, you can also ask about sleeping aids, I’ve been on Ambien for 15 years & I can’t sleep without it, not 10 minutes, I will probably never go off of Ambien & I love it, It does NOT take away the fatigue during the day, but it gets me to sleep at night & keeps me asleep. Fibromyalgics have severe sleeping problems, as tired as we are, most of us can’t sleep, either the pain keeps us awake or other FMS symptoms. Top that with the fact we need more sleep then healthy people, sleep becomes all the more important. So if you have ANY problems with sleeping at night, ask about sleeping aids.

The best treatment I’ve heard of (haven’t tried it yet because it takes a LOT of preparation & mind set before starting it, its pretty strict & you HAVE to stick to it, its Dr. St. Amands “Guiefeneson Protocol”. Here’s a link: http://www.fibromyalgiatreatment.com/index.htm
Its the most successful treatment for FMS out there. I have 2 friends who have stuck to it & feel a lot better, but you have to read the book & get a doctor to help you with it because there’s a lot involved. But a cool thing about this protocol is Dr. St Amand has FMS himself, so he knows! He’s like 80 years old & he’s awesome (I met him once & he’s so great!) I’m starting the protocol sometime this summer. It really is the best one I’ve ever heard of.

In the mean time, something I always tell others with FMS & CFS (chronic fatigue syndrome) is you can’t make the fatigue go away, you just can’t, however, by fighting it, by trying to stay awake & active & alert, it actually makes it worse. IF you possibly can, rest when you’re overwhelmed by that feeling. If you can, stop whatever you’re doing & go lay down & close you’re eyes, try to sleep if you can too, but you have to rest, don’t fight it. It ruins our days, it messes up all of our plans, but that’s just what we have to live with & by fighting it, we’re not doing anything but making it worse. It won’t go away if we deny its there, trust me!

Well, I talked way too much, didn’t I? Ha! Sorry, if you’re still awake, =) take care! & talk to your doc about the protocol & sleeping aids.

Q: What is the best treatment for Chronic Fatigue/Fibromyalgia?
I tried Cymbalta for 2 weeks and the side effects were horrible.

A: that stuff never worked for me. it was Ibuprofin, warm baths or a hot tub and something to make you sleep at night. the problem is that when you sleep you don’t go into a deep enough sleep for you muscles to relax. therefore you wake up just a tired and sore as when you went to bed if not worse. more than 2 days of sleep depravation will trigger your symtoms. good luck. sometimes you just have to work through the pain. I know it’s not much help but it happens.

Q: Has anyone out there ever been evaluated by a Fibromyalgia and Fatigue Center? What was your experience?
I ‘m considering an appointment but was curious to hear from someone who has already been through the experience. Is it worth the time and money, or is it psuedoscience? Do they know what they’re talking about or simply trying to push “snake oil” in the form of supplements?
I appreciate any insight anyone give give me on this one! Thanks!
My daughter (21 yrs old) was diagnosed in May (this year) and although I’m grateful for the relief she’s gotten with various medications, I can’t see her on these “heavy duty” meds every day for the rest of her life. If possible to actuallt treat the causes of her various symptoms that would be preferred.

A: Hi,
I did go to a Fibromyalgia and Fatigue Center a couple years ago. I was desperate and wanted my life back. I had a few months of feeling better (at a high cost). Eventually, I could not afford the expensive supplements as they changed frequently. My doctor was also extremely expensive. Needless to say I lost a lot of money and got little in return. I am now going through a nutritional supplement program with my Chiropractor. Several of my friends have gone to him and have been pleased with the results. I have been on the program for one year and am now able to do more than I was able to do a year ago. I also have significantly less tension in my neck muscles (confirmed by my massotherapist and my doctor who monitors my fibro). Whatever you do, be careful. Some supplements may be way too potent and end up stored in your body causing other problems. There is a lot you could lose. Check out all of your options and talk to others who have fibro. They are great resources. God bless!

Q: How do I differentiate between chronic fatigue syndrome, fibromyalgia, and depression?
I have all the symptoms for CFS and fibromyalgia. All my blood work comes up clean. Since I am a teenage girl, my doctors are trying to push depression although i don’t present the mental symptoms. My parents beleive it is more like CFS or fibromyalgia. How can i differentiate and get the correct diagnosis?

A: Dear,visit a real good specialist,a neurologist.to say accurately is it CFS and fibromyalgia or depression.I am inclined to think that if you not present the symptoms of depression it is more likely you not to suffer from it..and there’s so sure solution and also harmless..for CFS is reqiered to be treated simply with the addition of arginine aspartame,so try it..Sargenor is one product which contains it and you can buy it without prescription and has no side effects..Unfortunately,too many specialist don’t pay the needed attention and are inclined to superficial answers like too much stress,just a case of depression etc.I really suggest you to try(again I repeat Aspartame is totally free and taken even without a prescription will not harm you)..Sagenor..I suffered from CFS and that helped me within 10 days.I also suffered from depresson and can tell there’s a great difference between them!! Good luck and if you need more info or whatever I’ll be glad to answer you!!

Q: how do i get my spouse to understand about my Fibromyalgia and Chronic Fatigue syndrome?
She seems to think I am super women and I can get all housework done and errands in my condition. I just feel like laying down because of the pain and fatigue.

A: soem fibromyalgia association is promoting teh clothespin test-have the well partner put clothespins on her fingers and see how tehy tolerate it-

Think the pregnancy simulators that they have for teh non pregnant partner to teach tehmhow it feels-

could do something liek have your partner wear restrictive clothing-weights on arms and legs-set the alarm to go off at midnight-just keep hitting the snooze to bewoken up agian 9 minutes later-get up after only 3 hours of sleep for a week to simulate the fatigue…..

Q: Who has taken Provigil for fibromyalgia fatigue and did it help?

A: I take Provigil for fibro fatigue and yes, it has helped. While it doesn’t take the fatigue totally away, I find that I am able to function a wee bit better because I’m not quite as exhausted.

Lyrica is indeed the first med approved for fibro, however, it is the ’son’ of Neurontin, so those on Neurontin aren’t going to find this a ‘miracle’ cure. I just spoke with my doc yesterday about it to find out more. I had to admit I was disappointed, because I’ve been on neurontin for 13 years.

I think the medications are best suited to each individual – for example, I take Marinol because it helps with the pain and allows me to do more than before. It doesn’t take long before the side effects go away. I work with the doctors to try and find the best dosages and meds and go with it until something else comes along.

Good luck!

Q: Did you know Fibromyalgia and Chronic Fatigue Syndrome arent diseases?
They’re simply the symptom of a chemical intoxication or a nutrient deficiency.
Foods from stores contain chemicals. MSG is in almost all canned foods.

A: ther is a differenc ebetween REAL FMS and chemical intoxification andnutrient defiency

ALL 3 exist…..

just because some people have pain and fatigue from MSG or chemicals doesn’t mean tehy have fibromyalgia….

if the MSG theory were true–more people with be sick

there is a rumor about nutrasweet being teh cause of fibro–i never had nutrasweet–yet i have fibro

there are 2 types

REAL fibro
FAKE fibro

among the subtypes of teh fake–are teh attention seekinghypochonriacs and lazy people….as well as peoiple who really have something else such as lymes, arhritis, etc.

i have had REAL fms for over 30 years….i worked at least full time–if not over time–including volunteer work until last year when i experienced a major decline….i do also have a couple otehr conditions that complicate it….

when it started i was a child–i couldn’t keep up with my peers..at times it hurt to breathe and i felt like i was suffocating…i was very uncoordinated….

in my teens i was in excrutiating pain–i would press my leg against the heater trying to relive teh pain…

when i moved into my own place–i told teh neighbors not to call teh police if tehy heard me screaming at night–i was just in pain and tehre wasnithing taht could be done

i had FMS alone for about 12 years without any other chronic helath problems

so yes it is real–but it ishighly overdiagnised..

most docs are incompetant and are teh cause of teh problem–they label any pain–even if due to lifestyle choices or another condition as FMS

i know a diagnosiable hypochndriac taht has iot–as well as someoen who was trying to collect SSDI–while working in child care…..

i have heard many people on here say it is autoimmune or what theya re taking fro inflammation–

it is NOT beleived to be autoimmune–tehre is NO inflammtion–those people are most likely misdiagnosed

i say a couple say they were diagnosed with thyroid and fms on the same day–that in not possible–you have to manage th ethyroid 1st before you can consider teh fms diagnosis…thyroid casues paion and fatigue.

i have seen MANY people on her say they were initially diagnosed with FMS…butt han dound out tehy had thyroid or MS or lymes, etc…..most likely they nver had fms

many docs call teh pain of lymse –fms
or the pain of arthrist is fms–that is MALPRACTICE

they are starting to find irregularities in objective tests..hopefully they will be able to show who really has it and who doesn’t

i am 99% sure i really ahve it–i know i have something–i just cna’t be 100% sure it is fms

unfortunately most people with REAL fms do not recognize teh problem of misdiagnosis and automatically beleive everyione that says they have it–

i will not go to support groups or assocaite withotehr who claim to have it–unless i can beleive they might really have fms–

my hypochondriac friend consatntly whines about it–and i am really sick–and sick of her her bit$% when she really isn’ty sick–this woman thinks she has every disease she hears about..inlcuding cerebal palsy, autism, cancer, pnemonia, etc….

there is a difference between being tired and achy and being in such intense pain you can’t stand up or sleep..

at night i would dig my nails into my stomach trying to disctart myself from the pain in my legs

anyone who claims to ahve cured fms never had it in teh 1st place…they had a different condition such as a nutrional problem taht casued pain and fatigue

i don’t knwo why its all or nothing with people–they think it must always be true if someone says tehy have fms–or its always fake–

its both–i wouldn’t be surprised of only 10% of people claiming to have fms really do–and 90% of the tyime its the docs fault for misdiagnosisng it–teh people are really sick–just not with fms

just like ADHD–it is a real problem–but its also an excuse for misbehaving kids

fibromyalgia syndrome

Read and learn more about fibromyalgia syndrome. For more, visit the Pain Q&A website FeelTheHurt.com

Q: fibromyalgia syndrome?
My wife suffers from fibromyalgia syndrome and gets run down quite easily. Today she fainted twice and banged her head on the radiator. Obviously this is a little worrying as I would normally have been at work. She gets hardly any help from our GP. Every time somethings wrong with her he just says ‘Yeah, that’ll be your FMS’. Shes on strong medication (forever, we assume) to help with the pain. Is there anybody out there who might give us a little bit of good advice???

A: Fibromyalgia Syndrome – Cause – Diagnosis – Symptoms – Treatment
Fibromyalgia syndrome cause, diagnosis, symptoms, medications, pain relief, and treatment. Fibromyalgia syndrome is a chronic condition characterized by body aches, widespread pain, sleep problems, extreme fatigue, depression, anxiety, and other symptoms, in combination with tenderness of specific areas (muscles and tender points) on the body.

http://arthritis.about.com/od/fibromyalgia/Fibromyalgia_Syndrome_Cause_Diagnosis_Symptoms_Treatment.htm

Q: Where can I find a good doctor for fibromyalgia /chronic fatigue syndrome?
I’m based in Leicestershire, UK, and need a good NHS doctor, sympathetic and knowledgeable about fibromyalgia / chronic fatigue syndrome. Any suggestions how/where I might be able to access one?

A: Really sorry you have this, can’t really help, but in our area its impossible to find anyone who has an interest. My consultant saw me once told me to adjust my life style to cope and then signed me off. had some hydrotherapy and then was sent to a fitness classs which I declined because there was no way. No one seems to understand the nature of this awful illness.

Q: Can fibromyalgia or chronic fatigue syndrome be secondary to another medical problem?
My business partner has been VERY ILL for about 6 months I came across a article about cronic fatigue syndrome and fibromyalgia. He has every symptom. we have been to several physicians but still no diagnosis. Should we be looking for something specific other then CFS. can cronic fatigue syndrome secondary to other medical conditions?

A: The best way to be diagnosed is to get an appointment with a Rheumatologist. The College of rheumatology came up with the Tender Points and the diagnostic tool, which is still the standard in determining whether it is Fibromyalgia or one of the other diseases which it can mimic. Fibromyalgia and Chronic Fatigue Syndrome share many similar symptoms but are two separate diseases. A person can have both and yes they can be secondary to another separate Disease. Below I will list a couple of sites you may want to check into. I have found them very helpful in my own disease process. I am sorry for your friend’s illness and hope that at least a diagnosis will be forthcoming. My diagnosis was years in the process, so I understand the frustration. Recently there is so much more attention on the disease with the FDA approving a drug specifically for use with Fibromyalgia, that your friend will hopefully not have as far to go for an answer. Good luck to you both.

Q: How do I differentiate between chronic fatigue syndrome, fibromyalgia, and depression?
I have all the symptoms for CFS and fibromyalgia. All my blood work comes up clean. Since I am a teenage girl, my doctors are trying to push depression although i don’t present the mental symptoms. My parents beleive it is more like CFS or fibromyalgia. How can i differentiate and get the correct diagnosis?

A: Dear,visit a real good specialist,a neurologist.to say accurately is it CFS and fibromyalgia or depression.I am inclined to think that if you not present the symptoms of depression it is more likely you not to suffer from it..and there’s so sure solution and also harmless..for CFS is reqiered to be treated simply with the addition of arginine aspartame,so try it..Sargenor is one product which contains it and you can buy it without prescription and has no side effects..Unfortunately,too many specialist don’t pay the needed attention and are inclined to superficial answers like too much stress,just a case of depression etc.I really suggest you to try(again I repeat Aspartame is totally free and taken even without a prescription will not harm you)..Sagenor..I suffered from CFS and that helped me within 10 days.I also suffered from depresson and can tell there’s a great difference between them!! Good luck and if you need more info or whatever I’ll be glad to answer you!!

Q: I have suffered with fibromyalgia syndrome for over eight years. I have yet to find a combination of medicine
What is the best medications to take for fibromyalgia syndrome that won’t cause weight gain and have the least side effects?

A: That depends on the patients and their willingness to try lifestyle and dietary changes in addition to their medications. There is no simple answer.

In the next year there is going to be a new class of antidepressant that is going to come out that will make major changes in many disorders(Agomelatine), fibro being one of them. It works on both depression and insomnia without the fatigue we get from the current sleep meds. This medication also has none of the sexual side effects of our current medications. I would assume any medication that doesn’t have fatigue as a side effect will be most helpful for those of us suffering from weight gain problems. The medication is in final trials now. There is hope out there so hang tough .

Q: I think i might have chronic faitgue syndrome or fibromyalgia. how can i tell the difference?
I have been sick since late october early november. So far, the doctors have not been able to diagnose anything and have basically been putting me on random medications just to relieve the symptoms. I have missed 28 days of school since I first began getting sick and I can only miss two more before the end of school. I’m only fifteen.
Symptoms I have:
Fatigue (sleeping thirteen hours +) i have real trouble making it through a school day without falling asleep)
exhaustion
pain in my knees, ankles, and weirdly my elbows.
headaches
congestion
ive had a fever a couple times..
ive been really nauseous occasionally and ende up having to go to the ER because of it.

Does anyone who has CFS or Fibromyalgia identify with these symptoms or know of any other possible causes?
p.s. All blood tests have come up normal, and I dont have rashes or bruising on my body.

A: Oh Boy, Fibromyalsia is really tough to diagnose, but my guess would be at your age it isn’t that. Sounds more like Rheumatoid Arthritis, to me. Your other symptoms DO coincide with either disease. Except for the nausea, and that is probably from your meds. Your body is young for all or those and they are very bad for you.

I too have had a slew of blood tests going as far back as when I was 17(I’m 42 now) and nothing ever showed up in those tests until about 3yrs ago. Have your parents ask for extensive X-Rays, and a MRI. That is one true way to show the deterioration of your cartilage. My son is 21 and has also been diagnosed w/ Osteoarthritis, So you might try to determine if it is in your family background.

I have found 1 product that has been very helpful to my son and I, and its natural. Kinda expensive but we both feel its worth it!!!!

Questions? you can e mail me at bearsmom2005@yahoo.com
Good Luck, it is a long journey, but dont give up!

Q: which website gives the best information about fibromyalgia syndrome?
my friend is suffer this and i want to known how i can help her
thks very much for yours answers

A: Fibromyalgia is a common nonarticular disorder of unknown cause characterized by achy pain, tenderness, and stiffness of muscles, areas of tendon insertions, and adjacent soft tissues. Diagnosis is clinical. Treatment includes exercise, local heat, and drugs for pain and sleep.

Q: how do i get my spouse to understand about my Fibromyalgia and Chronic Fatigue syndrome?
She seems to think I am super women and I can get all housework done and errands in my condition. I just feel like laying down because of the pain and fatigue.

A: soem fibromyalgia association is promoting teh clothespin test-have the well partner put clothespins on her fingers and see how tehy tolerate it-

Think the pregnancy simulators that they have for teh non pregnant partner to teach tehmhow it feels-

could do something liek have your partner wear restrictive clothing-weights on arms and legs-set the alarm to go off at midnight-just keep hitting the snooze to bewoken up agian 9 minutes later-get up after only 3 hours of sleep for a week to simulate the fatigue…..

Q: Is anyone suffering from Fibromyalgia Syndrome and how do you cure it?

A: There are plenty of people suffering, because there isn’t a cure.

There are, however, ways to manage the symptoms, and you can improve your quality of life and prognosis.

It’s important to understand that fibromyalgia (FMS) is a neurological disorder of hypersensitivity. That means that the nervous system is cranked up to “high” for some reason, and can respond more intensely to all kinds of things. Most people are aware of the fact that people with FMS feel pain more intensely than other people, but we are also more sensitive to temperature changes, lighting, aromas, tastes, textures, and all kinds of other things. FMS can cause someone to take longer to heal from any kind of illness or injury, or to be more prone to illness.

The severity of FMS symptoms can wax and wane over time. When they are particularly bad, we refer to that period as a “fibro flare” or say the patient is “in a flare.” Stress is a major aggravating factor, and stress reduction can reduce your overall level of symptoms and the frequency of your flares.

Stress is a fairly anomalous concept, of course, and as long as we’re alive, we’re experiencing stress. But there are things we can control. We can reduce our contact with people who are particularly difficult to be around, even ending relationships with nasty people. We can change our living conditions, decluttering and making our homes easier to keep up with and more peaceful to live in.

One thing I very strongly recommend is establishing a “retreat zone” in your bedroom. Make that your safe place, where no arguments or difficult conversations are allowed. Do nothing unpleasant there. Bring in a HEPA air cleaner if you have any allergies. Make the room as dark as possible to guard your sleep. A fan or other white-noise generator will help to mask sounds from outside the noise. Give yourself a comfy place to sit and pursue your hobbies, if possible.

Reduce the stress on your body by cleaning up your diet. Eat fresh, whole foods, as close to the source as possible. Try reduce the amount of processed, packaged, “junk” foods you eat. Drink plenty of clean, filtered water.

Move gently every day. Stretch, do something like yoga or water exercise, continue some sport or activity you love – be as active as your body allows.

Warm baths and heating pads can help with the pain. If you need medication, don’t be shy about asking your doctor for help. If the meds that your general physician or rheumatologist will give you aren’t enough, ask for a referral to a pain management specialist. You aren’t likely to get one ’til you’ve been through a year or so of the meds from a rheumatologist, but after that, it’s reasonable to seek the referral.

Be warned, though, that if you have any history of drug or alcohol abuse, especially with any legal record, pain management doctors are unlikely to take you as a patient. They’re under too much legal scrutiny to do so.

Finally, keep a positive attitude. Take care of yourself emotionally and spiritually. Give yourself time to play – schedule it! In fact, schedule regular “dates” with yourself and separate dates with your partner, if you have one.

Chronic illness can be very hard on relationships. Be conscious of that, and talk openly with your partner about the strain. It may be a good idea to find a family therapist so that the whole family can have some extra support and a way to face the issue together. If you have kids, they may be afraid of what’s going on and not sure whether or not it’s okay to talk about it.

Good luck!

Q: Did you know Fibromyalgia and Chronic Fatigue Syndrome arent diseases?
They’re simply the symptom of a chemical intoxication or a nutrient deficiency.
Foods from stores contain chemicals. MSG is in almost all canned foods.

A: ther is a differenc ebetween REAL FMS and chemical intoxification andnutrient defiency

ALL 3 exist…..

just because some people have pain and fatigue from MSG or chemicals doesn’t mean tehy have fibromyalgia….

if the MSG theory were true–more people with be sick

there is a rumor about nutrasweet being teh cause of fibro–i never had nutrasweet–yet i have fibro

there are 2 types

REAL fibro
FAKE fibro

among the subtypes of teh fake–are teh attention seekinghypochonriacs and lazy people….as well as peoiple who really have something else such as lymes, arhritis, etc.

i have had REAL fms for over 30 years….i worked at least full time–if not over time–including volunteer work until last year when i experienced a major decline….i do also have a couple otehr conditions that complicate it….

when it started i was a child–i couldn’t keep up with my peers..at times it hurt to breathe and i felt like i was suffocating…i was very uncoordinated….

in my teens i was in excrutiating pain–i would press my leg against the heater trying to relive teh pain…

when i moved into my own place–i told teh neighbors not to call teh police if tehy heard me screaming at night–i was just in pain and tehre wasnithing taht could be done

i had FMS alone for about 12 years without any other chronic helath problems

so yes it is real–but it ishighly overdiagnised..

most docs are incompetant and are teh cause of teh problem–they label any pain–even if due to lifestyle choices or another condition as FMS

i know a diagnosiable hypochndriac taht has iot–as well as someoen who was trying to collect SSDI–while working in child care…..

i have heard many people on here say it is autoimmune or what theya re taking fro inflammation–

it is NOT beleived to be autoimmune–tehre is NO inflammtion–those people are most likely misdiagnosed

i say a couple say they were diagnosed with thyroid and fms on the same day–that in not possible–you have to manage th ethyroid 1st before you can consider teh fms diagnosis…thyroid casues paion and fatigue.

i have seen MANY people on her say they were initially diagnosed with FMS…butt han dound out tehy had thyroid or MS or lymes, etc…..most likely they nver had fms

many docs call teh pain of lymse –fms
or the pain of arthrist is fms–that is MALPRACTICE

they are starting to find irregularities in objective tests..hopefully they will be able to show who really has it and who doesn’t

i am 99% sure i really ahve it–i know i have something–i just cna’t be 100% sure it is fms

unfortunately most people with REAL fms do not recognize teh problem of misdiagnosis and automatically beleive everyione that says they have it–

i will not go to support groups or assocaite withotehr who claim to have it–unless i can beleive they might really have fms–

my hypochondriac friend consatntly whines about it–and i am really sick–and sick of her her bit$% when she really isn’ty sick–this woman thinks she has every disease she hears about..inlcuding cerebal palsy, autism, cancer, pnemonia, etc….

there is a difference between being tired and achy and being in such intense pain you can’t stand up or sleep..

at night i would dig my nails into my stomach trying to disctart myself from the pain in my legs

anyone who claims to ahve cured fms never had it in teh 1st place…they had a different condition such as a nutrional problem taht casued pain and fatigue

i don’t knwo why its all or nothing with people–they think it must always be true if someone says tehy have fms–or its always fake–

its both–i wouldn’t be surprised of only 10% of people claiming to have fms really do–and 90% of the tyime its the docs fault for misdiagnosisng it–teh people are really sick–just not with fms

just like ADHD–it is a real problem–but its also an excuse for misbehaving kids

Q: What’s the difference between fibromyalgia and chronic fatigue syndrome? Is fibro just a milder form of CFS?

A: one is NOT milder than the other

no one knows for sure–they may be teh same thing or variations of tehe same the thing–like type 1 and type 2 diabetes

for now they are considered to be different conditions…

cfids is thought to be autoimmmune and has more ’sick’ type symtpoms lick sore throat fever headache
fms is not beleived to be autoimmune

generally–if someoens primary symtpom is fatigue–they are more likely to be diagnosed with cfids

if teh primary symtom is pain it is more likely to be diagnosed as fms

many people are diagnosed with both

Q: Any problems with getting the shingles vaccine when you have fibromyalgia and chronic fatigue syndrome?
Has anyone with CFS/FM had the shingles vaccine and did you experience any bad side-effects?

A: I would avoid a vaccine. There is mercury, formaldehyde, lead, aluminum, phenols, etc. They are not that safe. I have heard that people with fibromyalgia benefit greatly from a wheat free diet. Maybe give that a try and avoid the poisons…
http://www.thinktwice.com/
http://www.nvic.org/state-site/state-exemptions.htm
http://www.vaclib.org/index.htm
http://www.mercola.com/article/vaccines/neurological_damage.htm
http://www.informedchoice.info/cocktail.html

http://www.vaccines.bizland.com/links.htm

Q: How were you diagnosed with Fibromyalgia and chronic fatigue syndrome?

A: you don’t need to meet the exact criteria to still have FMS–but many conditions are misdiagnosed as FMS–Vitamin deficiency, hormonal problems, lymes, MS, Lupus, depression etc…..if you have any of these–you most likely don’t have FMS–especially once treated and teh symptoms go away

it is possible to have both–but FMS is highly over diagnosed by incompetant doc sho use it as a genral term for pain–

to get a diagnosis–these and other similar conditions need to be ruled out–

Q: any body suffer from Fibromyalgia syndrome ? & If so would like to have someone to chat with?

A: Find a good support group. There are several on Yahoo, and you can also find several through FMA.

Q: If you have Fibromyalgia and you have chronic myofascial pain syndrome – what treatments worked?
I’ve been suffering with Chronic Myofascial pin in my upper back all the way across & the only thing that really stops the pain is if I lay down (I’m not going into that business). I have NOT been to a therapist that specializes in myofascial pain but I do see a LMT every 2 weeks. I take muscle relaxers & Tramadol along with other pain relievers. Help!

A: I have had some luck with a supplement called d-ribose (corvalen is the brand name I use) it has helped with energy and pain some.

fibromyalgia arthritis

Read and learn more about fibromyalgia arthritis. For more, visit the Pain Q&A website FeelTheHurt.com

Q: What’s the difference between fibromyalgia and arthritis ?
And whats the best way to know which one you have, have a apt at Dr. in a couple weeks would just like to know if I should ask if I could possibly have fibromyalgia
I forgot to mention this question was for my wife who had been told she has arthritis but she has pain all over her body, so this is why I asked. Thanks for any help

A: fibro= muscle pains
arthritis, affects joints, there are specific tests for arthrititis,
fibro can have trigger points, but the other fibromyalgia all over, some people get no relief from most common treatments, lyrica is often Rx’d, other anti depressants, heat, physical therapy, exercise esp for fibro and arthritis, depends on cause of arthritis, if trauma, septic or other causes.

lyrica.com usually women are dx’d w fibro , wonder why?

Q: My wife as fibromyalgia and arthritis. Hot running water seems to give her relief?
Financially,we can only afford one of those new whirlpool bath tubs. How hard is it to remove the old tub myself? And how to you do it? Lots of answers please.

A: Rather than replace the bathtub you might want to look at a spa bath mat – much less expensive and convenient – see link

Q: Are there any natural supplements that help with arthritis and fibromyalgia pain?
I have recently been diagnosed with osteoarthritis and am being tested for fibromyalgia as well. Are there any natural supplements out there that really work?

A: There are actually a few that have helped many people (including my Mom, who also has Fibromyalgia). You could try D-Ribose, Magnesium, a good B Complex (B-50 is usually adequate), Malic Acid, Methionine, and/or TMG (Trimethylglycine).
I would personally suggest adding only one of these to your regiment every month or so, just to see how your body reacts to each one (so you can see which ones work well and which ones don’t help).

As far as joints, there are several natural supplements that help joint health, which may remove the cause of the pain. The most popular are Microlactin, Tart Cherries, Glucosamine, Chondroitin, MSM, Hyaluronic Acid, Danish Rose Hips (specifically Danish ones), and Bromelain.
The only thing to really watch out for is allergies. Glucosamine is typically from Shellfish and Microlactin is from milk. As long as you’re not allergic to those, you should have no problem. Good luck and I hope I helped!

Q: I have recently been diagnosed with fibromyalgia and arthritis in both of my knees, i am active duty military?
and my unit is still trying to deploy me, don’t get me wrong i originally joined bc i wanted to deploy however, i am in an excruciating amount of pain even in a more relaxed environment, i honestly believe that deploying me would be like throwing me to the wolves, does anyone have any suggestions as to what i should do?

A: i’m surprised you don’t get a medical discharge

please clarify–do you only have pain in your knees or is it widespread

i wouldn’t rush to tru fms meds

while it is a very real condition–it is highly over diagnosed by idiot docs who use it as a general label for pain

if you ahve 2 bad knees that can cause starin on teh rest of your body–and therefore widespread and faitigue–but that doens’t mean it is fibro

there are other treatments for arthritis (i assume its osteo since its only teh knees)

KIDS CAN GET ARTHRITS–ever hear of JRA juvenile rhemtoiod artritis…my knee and foot have been arthritc (osteo) since my teens form injuries–anyone who says that is not possible is ignornat

i ahve had fibro since i was 5—so you are not too young

Q: What is a very effective pain patch or ointment over the counter for arthritis and fibromyalgia. ?
I have both conditions, particularly in my legs and hips.

A: I would recommend Voltaren (Diclofenac) ointment as a good one to try out first – patients with arthritis often get good results with it, but perhaps less so for fibromyalgia.

Q: What food supplement products work best for the treatment of osteo-arthritis and fibromyalgia?

A: glucosomine chondroitin for arthritis, magnesium maleate for fibro.

Q: Has there ever been a study to link HPV and Fibromyalgia or rheumatoid arthritis?
Those things are being diagnosed in women younger and younger. I was curious to know if anyone thought maybe HPV could be an underlying cause no one thought of.

A: No, there is no link. The only thing close would be if you had HPV and needed to have surgery to remove the cells and something went wrong; the physical and mental trauma could (but not likely) be enough to have someone get fibro. But there is no link to RA, you need to have a special RA factor in your blood to be diagnosed with that (some people with RA dont have a factor show up in results but still, there is no link.)

Q: Anyone else out there with Rheumatoid Arthritis and Fibromyalgia have trouble sleeping some nights?
And are you taking medication for these medical problems?

A: Yes, either one of these diseases can cause you to not sleep well. I have been diagnosed with these diseases for about 20 years and I think the not being able to sleep is one of the worst affects of the disease. I think it had a large part in leading to my divorce. Because as you know if you don’t sleep, you become grumpy and irritable. Like one of the other people said, Ambien works well, but your doctor will not let you use it long. Sometimes I go as much as 4-6 days, without going to sleep.
And you would think you would get so tired you would fall asleep, but I don’t. I usually end up taking something (prescribed by my doctor, to relax me). Tylenol PM or Advil PM helps some nights. But mostly I have found that it is a side affect I have just had to live with. I pray you have better results, and that everything works out for you.
Talk to your reumatologist about it. I can’t take a lot of the medicines because of other health conditions. But, a reumatologist can help you better than your regular medical doctor. Godd Luck, I will keep you in my prayers, God Bless.

Q: Any home remedies for arthritis, fibromyalgia?
my mommy suffers from arthritis and i wish i could help her, are there any grandma’s on here that know some really good home remedies??

A: How many informative answers!
What I have to add is very few, although I retain that indispensable.
As the conventional teratment of this disease remains unsatisfactory, among the various alternative treatments used there are also the following:
1. S-adenosylmethionine(SAMe) that is used in the treatment of both osteoarthritis and depression and it is for oral use.
2. 5-hydroxy-tryptofan(5-HTP). It is a serotonin precursor that has been administered for the treatment of depression, migraine, headaches and obesity.
There is a study showing an improvement of the situation of the patients who had taken this medication in 30 days.
3. Capsaicin. It is containd in hot pepper and it is FDA approved for postherpetic neuralgia. It is for local use and is a topical analgesic and can be the costituent of plasters, as well.
4. blue-green algae. Their meccanism of action, is not completely known, yet.
If you need more information about the dosage forms, you have to read the complete articles and of course refer to your doctor.
What you have to take always into consideration, are the drug interactions among pharmaceutical and natural therapies.

All the best

Katerina

Q: will a chiropractor help with my fibromyalgia and reactive arthritis?
i got diagnosed with fibromyalgia and reactive arthritus yesterday. any help or advice from others effected by both these things greatly appreciated, thanks!

A: I have fibromyalgia, and found that osteopaths and chiropractors didn’t help. Other than my usual medication, (check out Fibromyalgia association website for a lot of helpful info) I have a regular holistic massage. Some people find acupuncture helps, but I didn’t, found it far too painful.
You have my sympathy, especially as a lot of people not only won’t have heard of fibromyalgia, but won’t understand how much it affects your daily life.

Q: Fibromyalgia/Arthritis, why does it hurt more in the evenings?
I hate it, I’m tired all the time

A: Okay. A friend of mine suffers from this too. From what her doctor has told her it’s like this: You’ve been moving your body all day, right? Well now here you are at the end of the day and like everyone else who’s been moving and working, your body is tired. Unlike everyone else though, your body’s nerve endings are on fire. That’s because they are more active than every thing else. What would normally be light stiffness and a light, dull ache to another person to you is agony. Selenium HAS been shown to be of some help in alleviating this problem, yet not completely though.

Q: Is it the Fibromyalgia, Tendinitis or could it be Arthritis?
Two years ago, I was diagnosed with Fibromyalgia and previously had been treated for tendonitis through workers comp. for pain in my arms and hands. Currently, I am having pain while holding phones, steering, brushing my hair and doing common household cleaning tasks. In the winter months, my hips and toes ache but there is no indication of swelling. My doctor prescribed Predisone and said I may have some arthritis in the hips but no tests were run. For the toe pain, she indicated as there was no swelling it was muscular pain and to take Alive or Tyenol. I am at a loss as to what pain is making the arms, hands and toes ache. Is it all just the Fibromyalgia and does any have suggestions that might help?
Thank You to those that have taken the time to answer.

A: I have fibromyalgia as well. I would say that it is probably the FMS. I don’t know how much you know about FMS, but it can do crazy crazy things to you, and the symptoms for everyone are different.

Make sure you get all the tests done that you can to double check that it isn’t anything else and, if they can find nothing, you can then assume it is the FMS.

I also suggest that, if you have not already, you find a rheumatologist that specializes in FMS.

There is also www.healthboards.com that has an FMS board that I belong to. There are bunches and bunches of sweet ladies on there that have battled FMS for many years. They might be able to answer you better as they are very knowledgeable and have been through so much.

Also, here is a checklist (from that board) of every symptoms FMS CAN cause. FMS differs from person to person significantly, so symptoms can range from mild to severe and include any of the following:

GENERAL
____ Fatigue, made worse by physical exertion or stress
____ Activity level decreased to less than 50% of pre-illness activity level
____ Recurrent flu-like illness
____ Sore throat
____ Hoarseness
____ Tender or swollen lymph nodes (glands), especially in neck and underarms
____ Shortness of breath (air hunger) with little or no exertion
____ Frequent sighing
____ Tremor or trembling
____ Severe nasal allergies (new allergies or worsening of previous allergies)
____ Cough
____ Night sweats
____ Low-grade fevers
____ Feeling cold often
____ Feeling hot often
____ Cold extremities (hands and feet)
____ Low body temperature (below 97.6)
____ Low blood pressure (below 110/70)
____ Heart palpitations
____ Dryness of eyes and/or mouth
____ Increased thirst
____ Symptoms worsened by temperature changes
____ Symptoms worsened by air travel
____ Symptoms worsened by stress

PAIN
____ Headache
____ Tender points or trigger points
____ Muscle pain
____ Muscle twitching
____ Muscle weakness
____ Paralysis or severe weakness of an arm or leg
____ Joint pain
____ TMJ syndrome
____ Chest pain

GENERAL NEUROLOGICAL
____ Lightheadedness; feeling “spaced out”
____ Inability to think clearly (“brain fog”)
____ Seizures
____ Seizure-like episodes
____ Syncope (fainting) or blackouts
____ Sensation that you might faint
____ Vertigo or dizziness
____ Numbness or tingling sensations
____ Tinnitus (ringing in one or both ears)
____ Photophobia (sensitivity to light)
____ Noise intolerance

EQUILIBRIUM/PERCEPTION
____ Feeling spatially disoriented
____ Dysequilibrium (balance difficulty)
____ Staggering gait (clumsy walking; bumping into things)
____ Dropping things frequently
____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
____ “Not quite seeing” what you are looking at

SLEEP
____ Hypersomnia (excessive sleeping)
____ Sleep disturbance: unrefreshing or non-restorative sleep
____ Sleep disturbance: difficulty falling asleep
____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
____ Sleep disturbance: vivid or disturbing dreams or nightmares
____ Altered sleep/wake schedule (alertness/energy best late at night)

MOOD/EMOTIONS
____ Depressed mood
____ Suicidal thoughts
____ Suicide attempts
____ Feeling worthless
____ Frequent crying
____ Feeling helpless and/or hopeless
____ Inability to enjoy previously enjoyed activities
____ Increased appetite
____ Decreased appetite
____ Anxiety or fear when there is no obvious cause
____ Panic attacks
____ Irritability; overreaction
____ Rage attacks: anger outbursts with little or no cause
____ Abrupt, unpredictable mood swings
____ Phobias (irrational fears)
____ Personality changes

EYES AND VISION
____ Eye pain
____ Changes in visual acuity (frequent changes in ability to see well)
____ Difficulty with accommodation (switching focus from one thing to another)
____ Blind spots in vision

SENSITIVITIES
____ Sensitivities to medications (unable to tolerate “normal” dosage)
____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
____ Sensitivities to foods
____ Alcohol intolerance
____ Alteration of taste, smell, and/or hearing

UROGENITAL
____ Frequent urination
____ Painful urination or bladder pain
____ Prostate pain
____ Impotence
____ Endometriosis
____ Worsening of premenstrual syndrome (PMS)
____ Decreased libido (sex drive)

GASTROINTESTINAL
____ Stomach ache; abdominal cramps
____ Nausea
____ Vomiting
____ Esophageal reflux (heartburn)
____ Frequent diarrhea
____ Frequent constipation
____ Bloating; intestinal gas
____ Decreased appetite
____ Increased appetite
____ Food cravings
____ Weight gain (____ lbs)
____ Weight loss (____ lbs)

SKIN
____ Rashes or sores
____ Eczema or psoriasis

OTHER
____ Hair loss
____ Mitral valve prolapse
____ Cancer
____ Dental problems
____ Periodontal (gum) disease
____ Aphthous ulcers (canker sores)

COGNITIVE
____ Difficulty with simple calculations (e.g., balancing checkbook)
____ Word-finding difficulty
____ Using the wrong word
____ Difficulty expressing ideas in words
____ Difficulty moving your mouth to speak
____ Slowed speech
____ Stuttering; stammering
____ Impaired ability to concentrate
____ Easily distracted during a task
____ Difficulty paying attention
____ Difficulty following a conversation when background noise is present
____ Losing your train of thought in the middle of a sentence
____ Difficulty putting tasks or things in proper sequence
____ Losing track in the middle of a task (remembering what to do next)
____ Difficulty with short-term memory
____ Difficulty with long-term memory
____ Forgetting how to do routine things
____ Difficulty understanding what you read
____ Switching left and right
____ Transposition (reversal) of numbers, words and/or letters when you speak
____ Transposition (reversal) of numbers, words and/or letters when you write
____ Difficulty remembering names of objects
____ Difficulty remembering names of people
____ Difficulty recognizing faces
____ Difficulty following simple written instructions
____ Difficulty following complicated written instructions
____ Difficulty following simple oral (spoken) instructions
____ Difficulty following complicated oral (spoken) instructions
____ Poor judgment
____ Difficulty making decisions
____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
____ Difficulty following directions while driving
____ Becoming lost in familiar locations when driving
____ Feeling too disoriented to drive

Q: Could I have fibromyalgia or arthritis?
I have these temporary pains within my hands, arms, legs, and feet, and they are very painful. I haven’t seen a doctor about that since I’ve been to a doctor about every other day to find out what was wrong with my stomach. My aunt and mom suggested it could be, so if you think so, please let me know what it’s like and if I might have it. Thanks!

A: Well it sounds like me before I was diagnosed with fibromyalgia. There are some other symtoms that are very common to fibro that would help distinguish between fibro and arthritis. Fibro sufferrers have horrible headaches that last for hours or days at a time as well as depression and sleeping problems. Without at least 2 of these 3 symptoms I would have to lean towards arthritis but you really should see a doctor as they would likely perform tests to rule out other conditions before being able to make a diagnosis. It’s a frustrating diagnosis process but it is worth it to finally get answers.

Q: What foods causes arthritis and fibromyalgia?

A: There are no specific foods causing fibromyalgia and arthritis.
However, because there is a lot of inflammation in both cases, you would be well advised to avoid all pro-oxidants: processed carbohydrates (sugar, bread, ice-cream), coffee, alcohol.
Instead try to eat all seafood, fish, white meat, vegetables and plenty of water.

I found more advice on this site:

http://www.fibromyalgia-information-relief.com/fibromyalgia-treatment-longterm.html

Q: Can a chropractor help if you have arthritis or fibromyalgia?

A: cowboy isn’ta doctor either

chiropractersa rwe considerd to be doctors

may help if you have arthritis in teh spine–but otherwise no

real fms is a disorder of teh brain

fibromyalgia diet

Read and learn more about fibromyalgia diet. For more, visit the Pain Q&A website FeelTheHurt.com

Q: Can Diet Coke cause fibromyalgia-caused backaches to get worse?
My Mother has fibromyalgia very severely and she has lots of backaches caused by it. She drinks way too many diet cokes, and the more she drinks the more backaches she gets. Could diet cokes be causing her fibromyalgia-caused backaches to flare up? I need to know because her aches keep getting worse. Can you all help me?

A: Aspartame is a highly contraversial ingredient in Diet Coke that is reknown for health adversities. I would rule it down to this ingredient that is causing your Mother problematic backaches. Tell her to stop drinking it at once!

Q: Does an all organic vegetarian diet help Fibromyalgia? What are other ways to cope with Fibro?
I have tried massage, chiro, physio and IMS (Intramuscular stimulation) it helps but only for about 5 days and its painful and expensive. So far IMS has been the best thing I have tried. I am about to try Prolotherapy an injection of sugar water and a numbing drug. I have also started on an all organic no meat diet.

A: U may try the following with 100% safety. if it works/clicks, u r lucky. lest it will not aggravate.

1.ACUPRESSURE TECHNIQUES:

With ur thumb, press ur/his/her palms and soles, wrists and ankles on both sides. As a last point u must press middle part of each palm/sole; so that toxins, if any, shall be excreted/purged through urine without affecting the kidneys.
It should be done in an empty stomach or after 2 hours after meals. With this, all the endocrine glands and their hormonal secretions shall be regulated. All internal organs shall function up to optimal levels.

2. Mag Phos -3x — 2 grains t.d.s.

All these biochemic salts are safe and with side benefits. Don’t swallow medicine. The medicine to be dissolved on/under the tongue. Don’t take any thing 10 minutes before and 10 minutes after medication. You can take water. With best wishes from www.saioam.com.

Q: I want to know where to find the list of high protein diet on the internet for fibromyalgia?
I saw a posting from jmiller96003, telling about her success with protein diet for fibromyalgia. Is there a site that I can go to that has a list of all that I can eat and cannot? I am also wondering how many have had success with this diet. I saw this on Montel from Sylvia Browne and want to try. jmiller96003 will u contact me. I am new here and did not know how to contact u. I will try e-mailing u. Thanks Amy

A: Try this link

Q: What’s the best diet pill for someone with hypothyroid, PCOS, fibromyalgia, and prediabetes & no metabolism?
I have a low thyroid, PCOS, fibromyalgia, prediabetes, and a condition in which my stomach does not easily digest food. I seem to have no luck loosing weight and have no metabolism. Is there a diet pill that would work for me?

A: Their is no pill you should take in your condition.

Q: Is there A correlation between fibromyalgia and diet pills that have been used over a long time; not phenfen?
__ I am not trying to lose weight, but I have used prescription diet pills during my teenagre and 20’s. My friend has also and ahe has severe fibromyalgia just like me.

__What is this technique that is only 3 minutes. i have tried everything, and fibromyalgia just does what t wants to. If thee is a relief, it is a coincidence at the time of whatever treatment the person is doing at the time, What is your 3 minute cure?? Thanks

A: I have never heard of a correlation

FMS is a disorder of teh central nervous system.

there is no CURE–anybody claiming to have a cure is a quack–real FMS cannot be cured

Q: What is a good diet and exercise to do with fibromyalgia?
I have gained weight with fibromyalgia. It hurts to do anything… even walk for long periods. But I am sick of being fat. And no matter how healthy and little I eat, I cannot lose weight and just keep gaining. Any ideas on what I can do?

A: I tried the acai berry routine, and I think it’s just a bunch of hooey. I didn’t experience any weight loss.

I have fibromyalgia too, and my neck is killing me as I write this. But, the sad reality is that to lose weight, it takes a combination of exercise and monitoring calorie intake.

Before you begin any cardio, try stretching. I think that stiffness is one of the worst parts of having fibromyalgia. And having massages will loosen your muscles up and make you feel better.

It truly does feel like a vicious cycle, doesn’t it? You’re in pain, but you know you have to exercise and endure more discomfort in order to lose weight and feel better.

Best of luck to you!

Q: any good recipes for diet revolving around fibromyalgia?
in another post i asked for adivice with dealing with it and alot of people said changeing the diet so what are some recipies that taste good that will make it a little more torlerable? thanks for your time
thanks that link you gave looked like it had good recipies has anyone had any of the recipies if so were they any good

A: http://www.fibromyalgia-diet.ws/

Q: Have you changed your life and diet because of Fibromyalgia and did that help?
I have a friend that has been diagnosed with this disease and I’m doing some research for her. I’ve found many things on the internet, but will they really make a difference? This girl (38) has been health conscious(she is thin and keeps very active) all her life and she is having a difficult time now trying to keep up with 4 children and dealing with this disease at the same time.

A: I’m a 53 yr. old male and I used to exercise and watch my weight and kept myself in really good shape.Tens yrs. ago something was happening to my body,it started in my left foot but I just ignored it.As time went by my condition was getting worse so I went to see a specialist and he couldn’t find anything wrong with me.By the time I found a Dr. that could tell me what was wrong a yr. had passed and now the painful spasms go from my feet to the back of my head.She told me I had fibromyalgia. I figured the Dr. would give me pain killers and a cure all pill (didn’t happen). I’m sorry about your friend having this disease, I wouldn’t wish this on anyone. I have yet to find anything to help this problem. This has changed my whole life. Haven’t been able to work now for almost 10 yrs. The Dr. has me on very stong pain meds as well as antidipressants. Sorry for not having good news.

Q: Does a low-carb diet help alleviate the symptoms of fibromyalgia?
What do those mysterious medical words mean? In English please.
The last response of mine was in response to Conner, Ja.

A: a good diet will help any condition slightly—but don’t expect a major improvement..

you need to regulate the central nervous system to feel better

Q: whats a good diet for people with fibromyalgia?
I have fibromyalgia and I need a good selection of foods to eat.I love bacon hope I can eat it

A: I found this article to be informative. My mom has this too.

Q: I have fibromyalgia.What is the best diet out there to follow to help lessen the flare ups?

A: Plenty of fresh fruits & vegs. Eat only whole grains. Eliminate sugar, caffeine, white flour, white rice, white potatoes. Drink lots of pure water. Eliminate all sodas & anything with preservatives in it. Use only stevia or xylitol as sweeteners. Add beneficial oils to diet such as Omega 3, flax seed oil, olive oil. This is the diet prescribed by my dr & it helped me.

Q: Has anyone found a diet program to help relieve symptoms of Fibromyalgia?

A: Fibromyalgia is an illness that causes chronic pain in muscles and ligaments.In addition to muscular pain and stiffness, this ailment can also cause fatigue, sleep problems, depression, and an inability to think clearly.

No specific cause for fibromyalgia has been found.

One of the leading theories is that low levels of a chemical called serotonin may lead to the illness. Serotonin is found throughout the body and plays an important role in controlling pain and regulating sleep. Blood tests have confirmed that people with fibromyalgia have low serotonin levels.

Other researchers believe fibromyalgia is caused by a lack of deep sleep. It is during stage 4 sleep that muscles recover from the prior day’s activity and the body refreshes itself. Sleep studies show that as people with fibromyalgia enter stage 4 sleep, they become more aroused and stay in a lighter form of sleep. Even though they may sleep for a long period of time, they get poor quality sleep. Also, when researchers took normal volunteers and did not allow them to enter into stage 4 sleep, they developed symptoms similar to fibromyalgia.

Fibromyalgia Symptoms

Pain: The most prominent symptom of fibromyalgia is pain. Unlike arthritis, the discomfort is not in the joints but in the muscles and ligaments. The pain is commonly located in the neck, shoulders, back, and hips. The tenderness is worse in the mornings and has been described as flulike, burning, throbbing, aching, or stabbing.

Fatigue: Another frequent complaint associated with fibromyalgia is fatigue. In fact, it occurs so commonly that some doctors think fibromyalgia and chronic fatigue syndrome are the same disease. The severity of the fatigue can range from mild to incapacitating. In its worse form, fatigue can be so debilitating that some people have trouble keeping their jobs. No amount of sleep at night or rest during the day is helpful.

Fibrofog: Another common symptom is a mental haziness some people call fibrofog. This refers to the inability to concentrate, memory loss, and depression that occurs with fibromyalgia.

Other symptoms associated with fibromyalgia are headaches, nervousness, numbness, dizziness, and intestinal disturbances.

Signs and symptoms of fibromyalgia can vary, depending on the weather, stress, physical activity or even the time of day. Common signs and symptoms include:

Widespread pain. Fibromyalgia is characterized by pain in specific areas of your body when pressure is applied, including the back of your head, upper back and neck, upper chest, elbows, hips and knees. The pain generally persists for months at a time and is often accompanied by stiffness.
Fatigue and sleep disturbances. People with fibromyalgia often wake up tired and unrefreshed even though they seem to get plenty of sleep. Some studies suggest that this sleep problem is the result of a sleep disorder called alpha wave interrupted sleep pattern, a of a sleep disorder called alpha wave interrupted sleep pattern, a condition in which deep sleep is frequently interrupted by bursts of brain activity similar to wakefulness. So people with fibromyalgia miss the deep restorative stage of sleep. Nighttime muscle spasms in your legs and restless legs syndrome also may be associated with fibromyalgia.
Irritable bowel syndrome (IBS). The constipation, diarrhea, abdominal pain and bloating associated with IBS are common in people with fibromyalgia.
Headaches and facial pain. Many people who have fibromyalgia also have headaches and facial pain that may be related to tenderness or stiffness in their neck and shoulders. Temporomandibular joint (TMJ) dysfunction, which affects the jaw joints and surrounding muscles, also is common in people with fibromyalgia.
Heightened sensitivity. It’s common for people with fibromyalgia to report being sensitive to odors, noises, bright lights and touch.
Other common signs and symptoms include:

Depression
Numbness or tingling sensations in the hands and feet (paresthesia)
Difficulty concentrating
Mood changes
Chest pain
Dry eyes, skin and mouth
Painful menstrual periods
Dizziness
Anxiety

Q: Is there a diet that can help with fibromyalgia?

A: Yes diet can help depending on the person. Lots of people who have fibro have not only hypoglycemia but also have chemical sensitivities. This can be a double whammy when dealing with food. I have found in my fibromyalgia avoiding the following things has improved my level of pain:
AVOID:
All forms of caffeine, carbonated drinks, foods with MSG( I get migraines from it..which are common with fibromyalgia) foods with artificial additives, anything that contains any of the sweeteners from the Aspartame family of sweeteners, and for me foods which contain added sugar or starchy foods.

So you wonder what does that leave to eat? Basically foods as close to natural as possible. Lean meats, fruits, veggies and whole grains, low fat dairy. I drink water.

I found that my IBS type symptoms were actually caused by a gluten intolerance.

In my case my fibro is greatly influenced by the foods I eat. It took me several years to evolve my diet to something that works to reduce my pain. It wasn’t easy giving up all that convenience but is was worth it !

Q: does a gluten free diet cure fibromyalgia?

A: nO

Q: Please Help with Fibromyalgia, my hair is falling out, what medication should I take? Im scared.?
This weekend I have been to the ER two times, in 24hrs. I had 18 tubes of blood taken out, with neck xrays. All were negative. The last doctor who saw me mentioned Fibromyalgia. I had and still have tons of stess in my life, which may cause this. I had to quit my job, due to fatigue, tremors, and pain in my joints and muscles. What is the best thing to do for Fibromyalgia, diet, medications? What should I take for my hair loss? I just turned 31 the day he mentioned this to me. Im scared, please help
Thank you

Amy

A: Hi Amy! I have a couple friends who have fibromyalgia. Plus my mom. All three deal with it differently. My mom takes downers and ends up at the E.R. twice a month or so. She has tests done without any results. The docs just treat her like she’s nuts. One friend takes pain meds, downers, and alcohol. She’s a mess and still in pain. My third friend takes antidepressents and feels well most the time. Her hair started falling out at one time too. I take antidepressents for my anxiety/depression and it works sooo well. I don’t have a mental disorder, it’s a mood disorder. I dont get enough seratonin to my brain, a chemical imbalance. The meds control that flow and I feel better than I ever have..I’m in my late forties. Fibromyalgia is a condition that screws up the pain receptors. And if your not recieving enough seratonin either, you have a double whammy goin’ on. You stay stressed, stress and anxiety create fatigue and depression. And then you have the faulty pain receptors that create the chronic pain.’ which have fed off your emotional state. Are you following me here? Alot of people won’t even consider an antidepressent because they “think” it’ll make it justified that the pain is just psychological.. When in fact, the pain is real and not just a figment of ones imagination. Just because the tests are all clear, doesn’t mean diddly. I haven’t had exploratory surgery on my brain, but do know what’s wrong. It took one really good , educated psychologist to rule out any emotional trauma and finally tell me what was really wrong. Amen for her!

symptoms of fibromyalgia

Read and learn more about symptoms of fibromyalgia. For more, visit the Pain Q&A website FeelTheHurt.com

Q: What are some natural remedies for fibromyalgia symptoms?
I am 23 years old and I have been diagnosed by a rheumatologist with fibromyalgia. The drugs he prescribed are helping, but I still have pain in all of my muscles. My other symptoms include muscle weakness, difficulty sleeping, fatigue, dizziness, and IBS with constipation. The constipation is even worse with the meds.

A: I’ve had fibro for several years. Glad to hear you are interested in more natural options. I tried all the prescription drugs the Dr. gave me and most of the time they didn’t help and the side effects were awful. I decided to go natural. The first thing to get is Nature’s Way Alive! multivites. They are very good and have everything in them to support immunity. A good calcium/magnesium supplement of 2-1 ratio, malic acid,5 htp,msm,sam e, digestive enzymes, probiotics,coq 10, milk thistle, vit c, alpha lipoic acid,valerian root, olive leaf extract, fish oil, evening primrose oil. Light exercise as tolerated, meditation and yoga are very helpful too. Vitacost.com is a good place to get your supplements. Cheap and good shipping. You have to be very careful during cold and flu season as getting sick is magnified in fibro folks. The vites I mentioned have a green food in them and mushrooms for immunity. But should you get sick or even feel like you are or know you were exposed, get an elderberry extract, zicam or cold eze. Oregano oil is nature’s antibiotic and will kill alot of viruses, olive leaf is much the same. Osillo (a homeopathic remedy you can get at vitacost cheaper that anywhere else) is great. The # 1 flu remedy. Just 3 doses and you’re good. If you still get sick then you know is bacterial and not viral, then use the oregano oil and olive leaf. I know this may sound like a lot but you have to try and see what works best for you. Give it at least 3 months to see how you feel. And lastly, Do all the research and learn all you can. There are some good sources of info online and some companies are coming out with multi vitamins geared for fibro people. I hope this helps some.

Q: Does anyone know of some natural ways to treat Fibromyalgia Symptoms ?
The joint pain is really bad some days. My Mother has fibromyalgia and I want to help her feel better. thanks

A: She should have the doctor rule out Lupus as the cause of this pain. It is a simple blood test called “ANA”. If it is Lupus, the management is different.

For fibromylagia…
1. plenty of rest
2. warmth – avoid cold, it causes muscles to tighten up which can add to the pain of fibromyalgia
3. stretches – they help keep the muscles from tightening up from pain and causing the pain to get worse and last longer. The type of stretch would depend on where the pain is. Good books on stretching with pictures can be found at the bookstore or library.
4. massages – these also help work out tight muscles. I recommend finding someone at a PT office or spa who is trained and expereinced in helping people with sports injuries. You can ask if they have someone with that training at a spa near you. Massages are also relaxing which helps.

Q: Any good suggestions on how to relieve fibromyalgia symptoms?
Every morning I feel like I have been run over by a truck. Sometimes if I take tylenol or something before bed, I feel a little
better in the mornings, but most of the time I still hurt pretty bad. My husband says its all in my head. Do I need some kind of mental medicine or a pain reliever?

A: First of all, sorry, but your husband sounds like a big jerk. What the hell does he know how your body feels? That makes me so mad. What a great support system he is. Honestly, he is probably contributing to your problems. Stress control is a big factor in helping autoimmune diseases. Or really any illness.

Fibromyalgia can overlap or lead to other conditions too, so get checked out for Sacro Iliac joint problems, or arthrodesis conditions of the spine. Or be misdiagnosed.
I wake up with the pain you describe. I have to get out of bed. I sit on the couch, take Advil, use the heating pad and just wait for it to pass. It can take an hour or two.

Heat helps me, mild stretching and specific exercise. Swimming is the best! I also go to physical therapy and yoga.
Advil, and sometimes a muscle relaxer at night is necessary to stop the spasms. A good mattress helped my pain also.

Many benefit from antidepressants, methods to help with sleep, pain meds, and a host of other things. Some don’t need near as much. It is so varied. Everyone with this has different sets of symptoms. Try all conservative things to help you first, but don’t be ashamed to get the medications if you need them.

The regular antidepressants or meds don’t always help those with autoimmune problems, so see only a psychiatrist to follow you on these! Not a random Dr who will give you a prescription and not follow if it works, change the dosage, etc. every month or so until you get it right for you.

A good rheumatologist is essential. Family Drs mean well, but are just not knowledgeable enough in this complex field, not up on all the latest information and complications associated wtih autoimmune diseases to be your primary Dr.
It really takes a team approach to treat these problems, since they have an effect on most every part of your body and mind.

Many patients choose to add mental health therapy to the team effort with your other Drs. It sounds like you would benefit from it, since you are doubting yourself. Or start with finding a good support group of similar people.

Your husband could use some sensitivity training, and needs to go to family counseling or support groups with you. If he does not learn about this illness, and how to respect you and help you, it will be a long hard road for you. It does sound like he has issues and might need therapy himself.

It’s just mean and immature to tell someone who’s in pain, who you supposedly love, that it’s ‘all in their head’. That’s not normal.

Good luck to you, and God bless. Hang in there. It’s an ever changing roller coaster with this, so try to roll with it and learn, learn, learn how to help yourself in natural ways.

Q: When do symptoms of fibromyalgia start or possibly can start?
I have like all the symptoms. Im a an 18 year old female.

A: fibromyalgia is highly overdiagnosed by incompetant docs–its not any where near as prevelant as reported-

it is a real neuro condition—but actually not that common.

my symptoms started at 5

there are many conditions that mimin FMS.

even an aggressive lifestyle—I know someone who is overactive–volunatarilly only sleeping 5 hours a night/engaging in strenuaous activity voluntarily—she was diagnosed with Fms–but if she would just change her habits–she would proabbly be ‘cured’

Q: What are the symptoms of fibromyalgia?
I have the positive ANA but no lupus. I have muscle pain everywhere with fatigue and sometimes my heart will race but my doctor says my heart sounds good. Any advice?

A: pain and fatigue are the primary symptoms.

Q: What are most common symptoms of Fibromyalgia. Do you or someone you know have Fibromyalgia?
I have Mild Cerebral Palsy, affecting only my legs. I am 30, after my daughter was born 5 yrs ago, I had a lot of problems with my legs & back again. I am on disability now. I have always had problems with my legs, I limp, they hurt. Now I am weak , having problems walking long distances (the mall wears me out!). I have started dragging my feet again a lot. I had cortisone & steroid injections today, Dr seemed worried about me dragging my feet. He its too easy to blame everything on Cerebral Palsy. I read a little on Fibromyalgia. My Fiance & I believe I have a lot of those symptons!
Thank you, Sandra

A: i have suffered from fibromyalgia for years and the symptoms can vary for everyone. for me, there are times when it can be incapacitating (sp) but most days…i just have tenderness and mild to moderate pain. heat tends to help and it is beneficial if you can with cp to take a hot bath every night for about 10 to 15 minutes to help with the pain. to be diagnosed for certain…you must see a doctor….most likely a rheumatologist…and they will check pressure points on you…there are 18 different points which will trigger pain….and they will also touch spots that are not those….as some people think they have it….and it isn’t……..so, it is pretty definative. it is difficult at times…although, i imagine the cp is too. there are days when my skin literally hurts…..so, it is hard to explain to everyone. fatigue and stress makes it worse….so, take it easy

Q: What are the main symptoms of fibromyalgia?
My sister has been feeling very tired lately and has painful joints and muscles.

A: The signs of Fibromyalgia are numerous, but they all seem to trace back to pain symptom. Since many medical conditions are only noticed through pain, it can be hard to distinguish the symptoms of Fibromyalgia from a variety of other medical conditions involving pain.

In general, there are pains all over the body with a number of tender points as mentioned above.

One of the complications of the pain symptom is difficulty getting good sleep which will result in additional symptoms of Fibromyalgia such as difficulty remembering things and trouble solving complex problems.

Maybe this is why the Fibromyalgia Syndrome is also often related to the Chronic Fatigue Syndrome.

Depression can also be a symptom of Fibromyalgia as well as other mood issues and disorders.

It is not easy to diagnose so you may want to discuss this with your doctor.

Q: Which vitamins help alleviate symptoms of fibromyalgia?
A relative of mine has been diagnosed with “fibro” and even though she’s receiving medical treatment she still has problems with tiredness and achiness. I’m a big believer in natural remedies and would like advice about this. Thanks.

A: While vitamins won’t cure Fibromyalgia, it’s true that it’s important to be as healthy as you can in order to cope with it. I would suggest that your relative go to the doctor and get a complete blood-work done, one that includes thyroid testing as well as testing for vitamin and mineral deficiencies. A healthy diet is also recommended, one that eliminates sugar and white flour. A third thing that I’ve heard some people with fibromyalgia say is that certain allergies (ie: gluten, etc.) made their symptoms feel worse. By avoiding their triggers, some of their symptoms were lessened. There is a great yahoo group called Fibromyalgia Support Group that is very helpful. I highly recommend it.

Q: how do you know and what are the symptoms of fibromyalgia?
I’m 19 and I have leg pains late at night and I can’t sleep on my hips because I wake up in serious pain. How do you go about getting checked out?

A: Here:

http://www.arthritis.org/conditions/DiseaseCenter/Fibromyalgia/fibromyalgia.asp

Q: Does a low-carb diet help alleviate the symptoms of fibromyalgia?
What do those mysterious medical words mean? In English please.
The last response of mine was in response to Conner, Ja.

A: a good diet will help any condition slightly—but don’t expect a major improvement..

you need to regulate the central nervous system to feel better

Q: Fibromyalgia – symptoms, feelings of those who have it?
I’m trying to understand this disease – a friend has been recently diagnosed. What can I do to help her?

A: Having had fibromyalgia since 1982, I can say that the best thing you can do for your friend is to believe her when she tells you about what she is going through. It is not hypochondria – it is a REAL illness that is awful to have, so just be supportive. There is no cure as of yet. Symptoms fluctuate from day to day. Researchers are not sure what causes fibromyalgia, although some now think it’s a viral illness affecting the hypothalamus portion of the brain. My site at www.fms-help.com is a compassionate, supportive and informative place for people with FMS, their family and friends. Please visit and surf around. I have 50 signs of fibromyalgia, 100 tips for coping, and a lot of intriguing articles that will enlighten. Your friend needs all the support she can get. The fact that you wrote shows that you care, and that is wonderful!

Q: What produces the same symptoms as fibromyalgia
I experience;
unpatterned pain all over my body (shooting, and stabbing pain) (lasting about 60 seconds) It has consistently gotten worse and more frequent over the past 2 years) ( I’m at breaking point, this pain is sometimes debilitating.
I’m tired a lot
Irregular Bowel movements
I don’t sleep well…sometimes not at all
Difficulty paying attention, concentrating

I know these are symptoms of fibromyalgia (because i Looked it up) but is there anything else this could be?

PLEASE HELP
serious answers only

A: there are many other things it could be–

from Multiple Scelrosis and Lymes
to arthrits
to lupus
to depression
to a spinal/nerve injury
to hypothyroidism,
to bacterial or viral infections

Q: What have been YOUR symptoms of Fibromyalgia?
…assuming your either have this disorder or know someone who does…

I have had “it” for 14 yrs and am surprised to find that it has been a very painful plus physical and progressively declining illness. I just would like to get more info from other sufferers…not necessarily from web sites, but from first-hand experiences and trials. Am considering writing a book about this from the perspective of the person and not just the medical community. Thank you for your input. Write as much as you want…I will read it, I promise.

A: http://www.fmaware.org/site/PageServer

*hugs*

One of my former office managers had that affliction. The poor lady was tired and sore almost every single day.

Q: What are the major symptoms of fibromyalgia?
Also how is it diagnosed!!!?
Also in alot of cases are narcotic pain meds used to help with the pain?

A: Soreness in the muscles, stiffness, extreme fatigue, not being able to sleep, depression, irritable bowel syndrome, the list goes on.

It is diagnosed by process of elimination. Doctors run tests to rule out other conditions with similar symptoms. There isn’t a test specifically for Fibro. If all the tests are negative, then Fibro is suspected.

Treatment is also a matter of trial and error. Finding the right combination of treatments, physical therapies, lifestyle changes, and sometimes medications can take a while.

I have had Fibro for over 30 years and am an Owner of Yahoo’s largest Fibro support group. If you want more information come visit us at: http://health.groups.yahoo.com/group/Fibromyalgia-CFS/

Q: Suggestions To Manage Symptoms of Fibromyalgia?
I have had a string of health problems over the last year and have been to see 5-6 different doctors to try to obtain a diagnosis. After extensive blood tests, x-rays and evaluations, I have been told that no one knows exactly what is causing my various aches and pains and more than likely I have fibromyalgia.

This diagnosis does not account for the eye inflammation, chronic and severe sinusitus or fluctuations in my SED rate among other things. However, it is the only “diagnosis” that has been offered to explain the chronic pain in my arms.

Since this is all I have to go on, I was hoping someone might have suggestions on how I might be able to manage the symptoms of my “fibromyalgia”. I have been told to exercise more. Does anyone know of any other dietary/lifestyle changes that might potentially benefit someone with this condition? I’m also open to suggestion on how to obtain a real, conclusive diagnosis over a catch-all one given because no one is sure what’s wrong with me.

A: Nutrition is very important with this condition as with any serious physical condition. Avoid caffeine products, sugar, processed foods and fried foods. Low blood sugar (Hypoglycemia) is often a factor in causing the person with Fibromyalgia to feel fatigued. That is why a good nutrition program is very important, eating frequent small meals with some protein is very important in keeping the blood levels even.

Whole grains, seeds, nuts, yogurt, chicken, Turkey, organic beef, eggs, natural cheese and cottage cheese should form the base of your diet. Accompanied by Appropriate vegetables and a minimum amount of fruit.

A good quality multi-vitamin is absolutely essential with this condition. It’s important to replace what the body loses daily. If a person takes no other supplement but a multi-vitamin they’re helping to support their body daily. Co Q 10, in soft Gel form, 100mg taken three times daily can help increase the energy.

There’s no definite cure for Fibromyalagia but there are certainly many alternative methods that can help you improve the quality of your life. I find that deep tissue massage therapy removes most of my pain. If you do this on a regular basis you will find a decrease in pain.

Physical therapy that is performed at home is very important for Fibromyalgia. Warm water stretches performed at least three times weekly can be of tremendous help keeping the joints and muscles flexible. A Jacuzzi or hot tub is without a doubt one of the best treatments you can do at home, not only does it improve circulation you can also perform warm water stretches in it. If you have access to one and can use this daily you would see a tremendous change in the body. Using a moist heating pad on areas of pain for 20 minutes can ease the pain.

I also find that chiropractic care can bring tremendous relief. I always recommend people with Fibromyalgia seek out a Chiropractor who uses the activator method for physical therapy and pain relief. If you would like to find out about a doctor of chiropractic in your area who uses this method go to http://www.activator.com

Take a proactive role in learning about fibromyalgia to help control it, and be vigilant about following your treatment plan. Emotional support is very important too. Living with fibromyalgia may be difficult if your family, friends or employer do not understand the condition. Seek out supportive family, friends, clergy, support groups or a mental health counselor.